Another round of Pembro in the Books
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Another round of Pembro in the Books

› Forums › General Melanoma Community › Another round of Pembro in the Books

  • Post
    • May 9, 2018 at 1:47 pm
    TexMelanomex
    Participant

    Hey Warriors!!

    I hope this finds you all kicking some melanoma ass!

    Round 11 (I think?) completed yesterday and my first treatment since being bestowed with the coveted NED label. Treatment feels different now, mentally. Kind of difficult to describe…its a mix between being "easier", wondering "do I still need to do this" (even though I know I do), and a little bit of "now that you're down I'm going to keep kicking you!!"

    I'm curious how others felt about treatment once they were NED? I fully understand this is a high quality problem and to be clear I'm not complaining! It just feels different now, good, but different. 

    All of you warriors remain in my thoughts and prayers until ultimate victory is declared and this board no longer has a purpose, except as a place for nostalgia and remembering the "old days" when there was no cure.

    A special shout out to Melanoma Mike as he starts the Ippy/Nivo combo this week, Big Mike is deep in the fight and has upgraded his weaponry to defeat this most insidious bastard of an enemy. You got this Mike, NED or bust!

    Warrior On!

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      • May 9, 2018 at 2:02 pm
      JuTMSY4
      Participant

      Up until I had my little blip, I had some 20ish Pembro infusions.  Every time I walked in, I felt like an old vet.  My doc just sorta passed by on the basis that everything was fine (until one scan showed a small issue, which we surgically removed).  However, it felt like I was removed to the periphery of my doc's concerns – and it was understandable.  

      My experience was that I continued on this sorta maintenance process for a while (another year?) before we started looking into discontinuing. The discussion about this is perhaps the most confusing one right now.  

      • May 9, 2018 at 5:26 pm
      Julie in SoCal
      Participant

      Woohoo!  Doing the NED dance with you.

      Keep on kicking!

      Julie

      • May 11, 2018 at 3:55 am
      MelanomaMike
      Participant

      Hay Hay Tex! haha, thanks for the Shout of Love from the Lone Star State!, im pretty freakin' happy for ya man, I cant be mad at Merck for the Pembro not working for me, it just wasnt my combonation to shrink or kill these little bastards! so, like ya said, tommorows the big day, early morning, Opdivo & Yervoy will be flowing through my veins, lymphatic highways & bi-ways, diggin' fox holes & settin' up base camp cuz if Opdivo/Yervoy is as good as it claims to be, then the 1st Cavalry Division of immunal therapies is on the battlefield! give me 12 months and  i too will be NED!! i can feel it…You Rock Tex! youve been a HUGE {UUUGE} help to me..believe you me….Mike..

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