Rectal Melanoma, Treating with Yervoy and very weak
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Rectal Melanoma, Treating with Yervoy and very weak

› Forums › General Melanoma Community › Rectal Melanoma, Treating with Yervoy and very weak

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    • March 22, 2018 at 8:58 pm
    Gemmell
    Participant

    Hello,

    I am looking for answer and to understand everything that is going on with my mom.

    My mom was diagnosed with stage 4 rectal melanoma in June of 2017. She had a quick growing hemorrhoid. Once they removed it and found it cancerous she had a colostomy performed in July 2017. In August 2017, they found tumors on her liver and pelvic bone. She was put on Keytruda. The Keytruda did not work and was found to have more spots on her liver and lungs. During all of this my mom felt great and worked. She felt normal. In the beginning of Feb. 2018, she was put on Yervoy. Her first treatment was fine. After her second treatment, she felt very nausea with diarrhea and vomiting. Her second treatment was almost a month ago and she is still felling horrible. She was admitted to the hospital for a week to regain strength with IV and potassium. Once she got out she started to decline in strength again and sleeps 20+ hours a day and is totally out of it. She is on hydrocodone. When she does wake up she says she’s in pain and is nauseas. She went in for scans 2 days ago and it has shown the tumors have stopped growing but they have not decreased. The doctor says she should have 2 more treatments.

    My questions are. Is this normal, my mom was full of energy off or Yervoy and is now in pain and sleeping all of the time? When she is awake she tells us things like "remember I will always be watching over you". Do you think she can pull out of this after the treatments are finished? It has me very worried. Thanks

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      • March 23, 2018 at 1:49 pm
      Bubbles
      Participant

      Hi anon,

      I don't have a definitive answer about your mom…but I didn't want you to think no one out here cared!!  Yervoy can certainly produce fatigue and lots of other side effects.  It also can take a minute to work…so the fact that the tumors have remained stable is a hopeful sign that with a bit more treatement they will start to shrink!!!  Hydrocodone can cause some folks to be "out of it" and "nauseated"…but I don't know that that is what is contributing to your mom's condition.  I would talk to her docs so that they are fully aware of exactly how little she is awake, along with all the other aspects of her status that you described.  They may need to do additional scans or tests to determine what is going on.  Hang in there.  celeste

        • March 24, 2018 at 6:52 pm
        Edwin
        Participant

        I received my first Yervoy and Opdivo combination treatment on April 1, 2016.  This caused very bad diarrhea and worrying weight loss.  My doctor gave me Opdivo only for the next 2 treatments, until I regained weight. I received my second Yervoy and Opdivo combination treatment on June 3, 2016.  It was 2 months before I had recovered enough to receive my second Yervoy and Opdivo infusion.  

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