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2nd Round Keytruda

This topic has 2 replies, 2 voices, and was last updated 8 years, 2 months ago by Bubbles.

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- December 19, 2017 at 8:17 pm
- Quote
MelanomaMike
Participant

Hay folks! hope this finds you all well & kickin some Melanoma Glutious Maximus!.. as i stated a few days ago, i sucked up my 2nd delishous bag of Pembro, and boy im feeling blah! like i told another family member here at MRF, I feel like i have the beginings of the Flu everyday! not full on mind you, like the "Pre" feeling. Low energy, just all round blah. Then my weird issue with my Tattoos which i told you about, that their "raised", "bumpy" like "Braille" for the blind! lol..Pembro is obviously doing its job if its attacking my tattoos right? they arnt suppose to be there!..ill see my Oncologist soon, i plan to talk about my tiredness, im thinkin its because of "where" my tumors are located, "Lungs"…anyways, just checkin with you, i really hope everyones tumors are shrinking and or disapearing! i look forward to my 1st scan to check my progress!..

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- - December 19, 2017 at 9:26 pm
  - Quote
  sister of patient
  Participant
  
  Hi Mike – Like many, I've been watching your posts (and Tex's – both of you are amazing fellas and so humourous!!) and so I just want to say that I'm keepig my fingers crossed for you too for that scan result!! Just a thought but maybe a low-dose steroid will help with your fatigue. My sister tried to wean off steroids earlier this year but experienced nivo fatigue almost immediately and onc thought it wasn't worth it and put her back up. It might help!! Wishing you the best always but again, hoping that scan report says it all and you are kicking serious butt!!!
  
  Barb
- - December 20, 2017 at 2:33 am
  - Quote
  Bubbles
  Participant
  
  Hang in there. Did 2 1/2 years of opdivo – 2010 – 2013 after lung and brain mets. The other white meat. Fatigue is actually a "normal" condition when on immunotherapy….not something particularly related to "where" your tumors are located. Here's a post I put together years ago: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2013/10/side-effects-of-nivolumab.html
  
  It is still worth talking to your doc about. However, despite fatigue and other side effects, I worked full time, missing only three days of work, during my trial and remain NED with my last treatment being given in June of 2013. Hang tough. celeste

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