Seeking advice- possible spitzoid melanoma in a child
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Seeking advice- possible spitzoid melanoma in a child

› Forums › General Melanoma Community › Seeking advice- possible spitzoid melanoma in a child

  • Post
    • January 21, 2017 at 9:56 pm
    julieod
    Participant

    Hello- I was just told this week that a mole my 7 year old son had surgically removed on 1/6 is either a spitz nevus or spitzoid melanoma. I am located in NYC. The biopsy is now at USCF with Dr. Bastian (who I've been reading is the best). I'm being told that they will likely do a CGH Array comparative genomic hybridization- which can take up to 3 weeks to hear. This seems crazy to me as I can't imagine it's good to have to wait long if there's cancer and for my sanity!

    My son's dermatologist and surgeon have never seen SM and if it comes to that, I want to be sure I build the best team, although it's surprising to me it may not be in NYC. 

    If anyone has any advice of anything else I should be doing, any additional testing I shoud be requesting, or any questions I should be asking, I would greatly appreciate it. I'm just feeling a bit overwhelmed and I want to make sure I'm doing all I can do for my little boy. I'm a kidney cancer survivor myself and trying not to panic, but want to ensure I am my son's best advocate.

    Thank you!

     

     

     

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  • Replies
      • January 22, 2017 at 5:09 pm
      Becky
      Participant

      Hi

      Just want to say that I also have heard that Dr Bastian the best for differentiating spitz vs melanoma.

      If it does turn out to be melanoma, I think you will be able to find a good team in NYC…Sloan Kettering has a great reputation. It looks like there is a pediatirc dermotolosit at NYU.

      My (young adult) son moved from CA to NYC so I did a lot of research on possible doctors for him, although he never ended up going to any of them and has now moved back to CA. As a Mom, I know how scary this is for you and how hard it is to wait! Thinking positive thoughts

      Becky

       

      • January 22, 2017 at 5:09 pm
      Becky
      Participant

      Hi

      Just want to say that I also have heard that Dr Bastian the best for differentiating spitz vs melanoma.

      If it does turn out to be melanoma, I think you will be able to find a good team in NYC…Sloan Kettering has a great reputation. It looks like there is a pediatirc dermotolosit at NYU.

      My (young adult) son moved from CA to NYC so I did a lot of research on possible doctors for him, although he never ended up going to any of them and has now moved back to CA. As a Mom, I know how scary this is for you and how hard it is to wait! Thinking positive thoughts

      Becky

       

      • January 22, 2017 at 5:09 pm
      Becky
      Participant

      Hi

      Just want to say that I also have heard that Dr Bastian the best for differentiating spitz vs melanoma.

      If it does turn out to be melanoma, I think you will be able to find a good team in NYC…Sloan Kettering has a great reputation. It looks like there is a pediatirc dermotolosit at NYU.

      My (young adult) son moved from CA to NYC so I did a lot of research on possible doctors for him, although he never ended up going to any of them and has now moved back to CA. As a Mom, I know how scary this is for you and how hard it is to wait! Thinking positive thoughts

      Becky

       

        • January 23, 2017 at 2:36 am
        julieod
        Participant

        Thanks Becky!

        • January 23, 2017 at 2:36 am
        julieod
        Participant

        Thanks Becky!

        • January 23, 2017 at 2:36 am
        julieod
        Participant

        Thanks Becky!

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