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One of the lucky ones Taf/Mek
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One of the lucky ones Taf/Mek

› Forums › General Melanoma Community › One of the lucky ones Taf/Mek

  • Post
    • September 26, 2016 at 11:13 am
    mom3girlsFL
    Participant

      Hi All,

      Just wanted to post real quick recent scans show NED!!! After being on (sometimes off) various doses of tafinlar mekinist combo I am mel free! Wow, can't even believe it! 

      Have been on almost a year so i was honestly not expecting the good news.  Even the last lingering 2mm lung nodule has disappeared.  Oncology appointment tomorrow. Not sure where we go from here…any thoughts?  Will i be on meds indefinitely?

      Ugh, just trying to enjoy the news and clearing "thoughts" from my head!

      Laurie

      2002 stage 1

      2010 stage 3 – radical groin dissection

      2015 stage 4 – lung, retroperinoteal/para aortic – Taf/Mek combo

    Viewing 8 reply threads
    • Replies
        • September 26, 2016 at 12:37 pm
        Patrisa
        Participant

          Wow mom3girlsFL,

           

          that is fantastic news, sooo happy for you!

          Love,

           

          Patrisa

          • September 26, 2016 at 12:37 pm
          Patrisa
          Participant

            Wow mom3girlsFL,

             

            that is fantastic news, sooo happy for you!

            Love,

             

            Patrisa

            • September 26, 2016 at 12:37 pm
            Patrisa
            Participant

              Wow mom3girlsFL,

               

              that is fantastic news, sooo happy for you!

              Love,

               

              Patrisa

              • September 26, 2016 at 5:53 pm
              debwray
              Participant

                Lovely to hear some hear some good news. Long may it continue !

                Best wishes

                Deb

                 

                • September 26, 2016 at 5:53 pm
                debwray
                Participant

                  Lovely to hear some hear some good news. Long may it continue !

                  Best wishes

                  Deb

                   

                  • September 26, 2016 at 5:53 pm
                  debwray
                  Participant

                    Lovely to hear some hear some good news. Long may it continue !

                    Best wishes

                    Deb

                     

                    • September 27, 2016 at 5:25 pm
                    Yvette
                    Participant

                      Great news!!!

                      Thank you for sharing and please keep us updated on your next steps. I'm only 5 months in on the combo and the side effects are finally starting to calm down. Living a more 'normal' life has been such a wonderful break. 

                      Yvette 

                      (Responder to taf/mek combo, 2013 stage 1b – primary on scalp, 2016 stage 4 – lungs, pancreas, liver)

                      • September 27, 2016 at 5:25 pm
                      Yvette
                      Participant

                        Great news!!!

                        Thank you for sharing and please keep us updated on your next steps. I'm only 5 months in on the combo and the side effects are finally starting to calm down. Living a more 'normal' life has been such a wonderful break. 

                        Yvette 

                        (Responder to taf/mek combo, 2013 stage 1b – primary on scalp, 2016 stage 4 – lungs, pancreas, liver)

                        • September 27, 2016 at 5:25 pm
                        Yvette
                        Participant

                          Great news!!!

                          Thank you for sharing and please keep us updated on your next steps. I'm only 5 months in on the combo and the side effects are finally starting to calm down. Living a more 'normal' life has been such a wonderful break. 

                          Yvette 

                          (Responder to taf/mek combo, 2013 stage 1b – primary on scalp, 2016 stage 4 – lungs, pancreas, liver)

                      Viewing 8 reply threads
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