CNLD question
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

CNLD question

› Forums › General Melanoma Community › CNLD question

  • Post
    • July 31, 2016 at 11:41 am
    Shaneswife
    Participant
    My husband is having a right groin CNLD and I was wondering if he will need crutches to get around after? I want to order them from the health care store but wanted to ask first if any of you needed them after.

    Thanks in advance.

    Janis

Viewing 11 reply threads
  • Replies
      • July 31, 2016 at 1:24 pm
      Aaron
      Participant

      I don't think they are necessary but would be nice to have. It is a wicked surgery that will require lots of elevation.  We asked my doctor about how well I would be able to get around and I asked if I would be able to get the mail as an example and he said only if I promised to lay back down after I got it. 

        • July 31, 2016 at 2:03 pm
        Shaneswife
        Participant
        May I ask how long you were laid up for? In terms of needing someone at home with you. I’m wondering how much time I should book off work to help my husband get around the house. We have a lot of stairs.
        • July 31, 2016 at 7:38 pm
        momof4boys
        Participant
        I think what my surgeon said was if they have to move this muscle to get to the lymph cluster then the recovery is harder and i think that is why. I had to climb stairs to get to bed so that was a challenge. I also got an infection so it was just much harder on me. Some people are acting like it wasnt a hard surgery at all and i certainly don’t remember that being the case. Everyone is different. I also had children at home due to it being summer and they helped quite a bit. I say play it by ear.
        • July 31, 2016 at 7:38 pm
        momof4boys
        Participant
        I think what my surgeon said was if they have to move this muscle to get to the lymph cluster then the recovery is harder and i think that is why. I had to climb stairs to get to bed so that was a challenge. I also got an infection so it was just much harder on me. Some people are acting like it wasnt a hard surgery at all and i certainly don’t remember that being the case. Everyone is different. I also had children at home due to it being summer and they helped quite a bit. I say play it by ear.
        • July 31, 2016 at 7:38 pm
        momof4boys
        Participant
        I think what my surgeon said was if they have to move this muscle to get to the lymph cluster then the recovery is harder and i think that is why. I had to climb stairs to get to bed so that was a challenge. I also got an infection so it was just much harder on me. Some people are acting like it wasnt a hard surgery at all and i certainly don’t remember that being the case. Everyone is different. I also had children at home due to it being summer and they helped quite a bit. I say play it by ear.
        • August 1, 2016 at 1:24 am
        Aaron
        Participant

        My muscle was moved as well. I am a bit different and I am a right leg amputee with a prosthetic and my left groin/leg had the lymph nodes removed. The bulbs are a nuisance and he certainly won't be walking any marathons but after a few days getting around will be easier but for the most part he is going to want to stay reclined and elevated.  

        • August 1, 2016 at 1:25 am
        Aaron
        Participant

        Crutches will definitely be nice for the first week at least 

        • August 1, 2016 at 1:25 am
        Aaron
        Participant

        Crutches will definitely be nice for the first week at least 

        • August 1, 2016 at 1:25 am
        Aaron
        Participant

        Crutches will definitely be nice for the first week at least 

        • August 1, 2016 at 1:24 am
        Aaron
        Participant

        My muscle was moved as well. I am a bit different and I am a right leg amputee with a prosthetic and my left groin/leg had the lymph nodes removed. The bulbs are a nuisance and he certainly won't be walking any marathons but after a few days getting around will be easier but for the most part he is going to want to stay reclined and elevated.  

        • August 1, 2016 at 1:24 am
        Aaron
        Participant

        My muscle was moved as well. I am a bit different and I am a right leg amputee with a prosthetic and my left groin/leg had the lymph nodes removed. The bulbs are a nuisance and he certainly won't be walking any marathons but after a few days getting around will be easier but for the most part he is going to want to stay reclined and elevated.  

        • July 31, 2016 at 2:03 pm
        Shaneswife
        Participant
        May I ask how long you were laid up for? In terms of needing someone at home with you. I’m wondering how much time I should book off work to help my husband get around the house. We have a lot of stairs.
        • July 31, 2016 at 2:03 pm
        Shaneswife
        Participant
        May I ask how long you were laid up for? In terms of needing someone at home with you. I’m wondering how much time I should book off work to help my husband get around the house. We have a lot of stairs.
      • July 31, 2016 at 1:24 pm
      Aaron
      Participant

      I don't think they are necessary but would be nice to have. It is a wicked surgery that will require lots of elevation.  We asked my doctor about how well I would be able to get around and I asked if I would be able to get the mail as an example and he said only if I promised to lay back down after I got it. 

      • July 31, 2016 at 1:24 pm
      Aaron
      Participant

      I don't think they are necessary but would be nice to have. It is a wicked surgery that will require lots of elevation.  We asked my doctor about how well I would be able to get around and I asked if I would be able to get the mail as an example and he said only if I promised to lay back down after I got it. 

      • July 31, 2016 at 1:31 pm
      momof4boys
      Participant
      Yes you will need crutches. When they do the groin they likely have to mess with a muscle. You should have some on hand
        • July 31, 2016 at 1:48 pm
        Shaneswife
        Participant
        Thanks for the feedback. I will order a set.
        • July 31, 2016 at 1:48 pm
        Shaneswife
        Participant
        Thanks for the feedback. I will order a set.
        • July 31, 2016 at 1:48 pm
        Shaneswife
        Participant
        Thanks for the feedback. I will order a set.
      • July 31, 2016 at 1:31 pm
      momof4boys
      Participant
      Yes you will need crutches. When they do the groin they likely have to mess with a muscle. You should have some on hand
      • July 31, 2016 at 1:31 pm
      momof4boys
      Participant
      Yes you will need crutches. When they do the groin they likely have to mess with a muscle. You should have some on hand
      • July 31, 2016 at 3:17 pm
      SABKLYN
      Participant

      I didn't need crutches or any other kind of walking assistance.I guess in some cases it may be needed, but I was fully ambulatory after the surgery.  Your husband will have his JP bulbs into which fluid will drain (for as long as three weeks) which are an inconvenience but definitely manageable.  The biggest issue is post op infection which I developed a couple of weeks after surgery and wound up back in the hospital for IV antibiotics.  Lymphadenopathy is always a possibility.  I was fortunate and really had virtually none.  Make sure he has his compression stockings that should be used as directed.  I wound up using for about three months and then haven't used them since.  

      Good luck!

      Stan

        • July 31, 2016 at 6:21 pm
        SABKLYN
        Participant

        That should read lymphadema

         

        • July 31, 2016 at 6:21 pm
        SABKLYN
        Participant

        That should read lymphadema

         

        • July 31, 2016 at 6:21 pm
        SABKLYN
        Participant

        That should read lymphadema

         

      • July 31, 2016 at 3:17 pm
      SABKLYN
      Participant

      I didn't need crutches or any other kind of walking assistance.I guess in some cases it may be needed, but I was fully ambulatory after the surgery.  Your husband will have his JP bulbs into which fluid will drain (for as long as three weeks) which are an inconvenience but definitely manageable.  The biggest issue is post op infection which I developed a couple of weeks after surgery and wound up back in the hospital for IV antibiotics.  Lymphadenopathy is always a possibility.  I was fortunate and really had virtually none.  Make sure he has his compression stockings that should be used as directed.  I wound up using for about three months and then haven't used them since.  

      Good luck!

      Stan

      • July 31, 2016 at 3:17 pm
      SABKLYN
      Participant

      I didn't need crutches or any other kind of walking assistance.I guess in some cases it may be needed, but I was fully ambulatory after the surgery.  Your husband will have his JP bulbs into which fluid will drain (for as long as three weeks) which are an inconvenience but definitely manageable.  The biggest issue is post op infection which I developed a couple of weeks after surgery and wound up back in the hospital for IV antibiotics.  Lymphadenopathy is always a possibility.  I was fortunate and really had virtually none.  Make sure he has his compression stockings that should be used as directed.  I wound up using for about three months and then haven't used them since.  

      Good luck!

      Stan

      • August 1, 2016 at 2:30 pm
      slh4448
      Participant

      Regarding the compression stockings, are those typically provided to you while in surgery or should I plan on getting them before the surgery and take to the hospital with me??? Thanks.

      • August 1, 2016 at 2:30 pm
      slh4448
      Participant

      Regarding the compression stockings, are those typically provided to you while in surgery or should I plan on getting them before the surgery and take to the hospital with me??? Thanks.

        • August 1, 2016 at 2:39 pm
        Aaron
        Participant

        The hospital will provide a light weight compression hose. You will need to purchase  the real things later after being measured, etc 

        • August 1, 2016 at 2:39 pm
        Aaron
        Participant

        The hospital will provide a light weight compression hose. You will need to purchase  the real things later after being measured, etc 

        • August 1, 2016 at 2:43 pm
        slh4448
        Participant

        Thanks Aaron. So will I get measured while in the hospital and at least be able to wear what they provide me until I receive my new ones?

        • August 1, 2016 at 2:43 pm
        slh4448
        Participant

        Thanks Aaron. So will I get measured while in the hospital and at least be able to wear what they provide me until I receive my new ones?

        • August 1, 2016 at 2:43 pm
        slh4448
        Participant

        Thanks Aaron. So will I get measured while in the hospital and at least be able to wear what they provide me until I receive my new ones?

        • August 1, 2016 at 2:39 pm
        Aaron
        Participant

        The hospital will provide a light weight compression hose. You will need to purchase  the real things later after being measured, etc 

        • August 1, 2016 at 4:09 pm
        momof4boys
        Participant
        I never got anything or wore any kind of compression until my drains were out and i started seeing a lymphadema therapist. She sent me to get the stocking. At that time, whichever pharmacy you go to will measure you and order you a stocking. You cant compress until your drains are out.
        • August 1, 2016 at 4:09 pm
        momof4boys
        Participant
        I never got anything or wore any kind of compression until my drains were out and i started seeing a lymphadema therapist. She sent me to get the stocking. At that time, whichever pharmacy you go to will measure you and order you a stocking. You cant compress until your drains are out.
        • August 1, 2016 at 4:09 pm
        momof4boys
        Participant
        I never got anything or wore any kind of compression until my drains were out and i started seeing a lymphadema therapist. She sent me to get the stocking. At that time, whichever pharmacy you go to will measure you and order you a stocking. You cant compress until your drains are out.
      • August 1, 2016 at 2:30 pm
      slh4448
      Participant

      Regarding the compression stockings, are those typically provided to you while in surgery or should I plan on getting them before the surgery and take to the hospital with me??? Thanks.

Viewing 11 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics