Starting last Friday up through today I have spent the better part of every day (except Tuesday) and one overnight in the hopital. My poor husband has been with me every time and so has missed much of his work week as well. Hoping this trend doesn't continue.
Last Friday I started the week with a regular visit with my oncologist before Monday's scheduled infusions of IPI/PD-1. After looking at my bloodwork and listening to my complaints of worsening belly pain (not nausea) over the previous couple of days he decided to admit me overnight for a chest/abd/pelvis CT and a blood transfusion. He also more or less banned NSAIDs as a method of pain relief and told me to use Tylenol (virtually useless) or opiods (which make me dizzy, nauseated, and generally non functional). I wasn't very happy and we ended up with a compromise that I could use Advil and a muscle relaxant in the morning (back pain) to be functional, and the opioid in the evening when I don't need to be functional, just sleep.
I was discharged Sat morning following the CT, and 2 units of blood. As many know, hospitals are not restful places to start with, let alone with the additional monitoring that comes with a blood transfusion. I spent most of the rest of the weekend resting.
Monday morning I went back in early for a recheck and to get my infusions. They added an IV Fe and started me back on Zometa (for bone strength), so by the end I was there from 8-2. Just got a light lunch and went home- no point in trying to go to work.
Tuesday didn't go to the hospital, but abdominal pain got more prominant, and by Wed morning didn't even dare put water into my stomach I was in such pain. Calle my oncologists office and they had me come in- husband drove and 2 L of fluids and multiple IV meds later we were there from about 9-3, with instructions to come back today @ 10:30. We were there at 10 hoping to be done and have me home before my husband's 1:00 meeting. Didn't happen. While we got started early enough, didn't get the Dr visit, meds, and port de-access until around 2. Husband had meetings at 2 and 3, obviously missed the 2, but instead of being at home resting, I'm hiding in my office waiting for him to come back and get me. His meeting just ended, so we'll be on our way soon.
Not what either of us had in mind for the week, but he's done so much I can't get mad about this. Hoping to not have to go back to the hospital again for a while and planning to just stay home tomorrow.
-Eva
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