White spots on skin??
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White spots on skin??

› Forums › General Melanoma Community › White spots on skin??

  • Post
    • June 27, 2016 at 11:54 am
    Rita and Charles
    Participant

    Has anyone experienced patches of their skin turning into white blotches??  Charles' arms and part of chest have now gotton white splotches instead of his normal skin tone.  I assume it is lack of melanon??  Any feedback or experience shared is great, thank you.

    Rita

Viewing 11 reply threads
  • Replies
      • June 27, 2016 at 12:29 pm
      Janner
      Participant

      Vitiligo – do a search.  Considered a good sign when on immunotherapy. 

        • June 28, 2016 at 12:00 am
        Rita and Charles
        Participant

        Thanks Janner…….the kink is he isn't on immunotherapy yet, that will happen TBD after our July scans. He just finished BRAF combo, has been off it with no meds for almost 2 months now……..holding pattern..Thanks for your response, as awlays.

        Rita

        • June 28, 2016 at 12:00 am
        Rita and Charles
        Participant

        Thanks Janner…….the kink is he isn't on immunotherapy yet, that will happen TBD after our July scans. He just finished BRAF combo, has been off it with no meds for almost 2 months now……..holding pattern..Thanks for your response, as awlays.

        Rita

        • June 28, 2016 at 12:33 am
        Janner
        Participant

        Still a good sign – it could be an after effect of the BRAF drugs which target melanocytes.   Melanoma is also known to be one cancer that can go into spontaneous remission.  Wishing you luck on the scans!!!

        • June 28, 2016 at 12:33 am
        Janner
        Participant

        Still a good sign – it could be an after effect of the BRAF drugs which target melanocytes.   Melanoma is also known to be one cancer that can go into spontaneous remission.  Wishing you luck on the scans!!!

        • June 28, 2016 at 12:33 am
        Janner
        Participant

        Still a good sign – it could be an after effect of the BRAF drugs which target melanocytes.   Melanoma is also known to be one cancer that can go into spontaneous remission.  Wishing you luck on the scans!!!

        • June 28, 2016 at 12:00 am
        Rita and Charles
        Participant

        Thanks Janner…….the kink is he isn't on immunotherapy yet, that will happen TBD after our July scans. He just finished BRAF combo, has been off it with no meds for almost 2 months now……..holding pattern..Thanks for your response, as awlays.

        Rita

      • June 27, 2016 at 12:29 pm
      Janner
      Participant

      Vitiligo – do a search.  Considered a good sign when on immunotherapy. 

      • June 27, 2016 at 12:29 pm
      Janner
      Participant

      Vitiligo – do a search.  Considered a good sign when on immunotherapy. 

      • June 27, 2016 at 1:37 pm
      Gene_S
      Participant

      Hi Rita,

      Yes my husband was on Ipi and did get the white spots as Janner pointed out vitiligo.  He has it mainly on his face and even the facial hairs are mostly white.

      When his eyebrows started white the oncologist said that was a good sign that it was probably working.  His mainly went down face and to the collar bone.  His hair on his head stayed dark but he says he has Santa eyebrows.

      He has been NED for over 3.5 years so he will take the white in exchange.

      Judy (loving wife of Gene – Stage IV and now NED)

      • June 27, 2016 at 1:37 pm
      Gene_S
      Participant

      Hi Rita,

      Yes my husband was on Ipi and did get the white spots as Janner pointed out vitiligo.  He has it mainly on his face and even the facial hairs are mostly white.

      When his eyebrows started white the oncologist said that was a good sign that it was probably working.  His mainly went down face and to the collar bone.  His hair on his head stayed dark but he says he has Santa eyebrows.

      He has been NED for over 3.5 years so he will take the white in exchange.

      Judy (loving wife of Gene – Stage IV and now NED)

      • June 27, 2016 at 1:37 pm
      Gene_S
      Participant

      Hi Rita,

      Yes my husband was on Ipi and did get the white spots as Janner pointed out vitiligo.  He has it mainly on his face and even the facial hairs are mostly white.

      When his eyebrows started white the oncologist said that was a good sign that it was probably working.  His mainly went down face and to the collar bone.  His hair on his head stayed dark but he says he has Santa eyebrows.

      He has been NED for over 3.5 years so he will take the white in exchange.

      Judy (loving wife of Gene – Stage IV and now NED)

      • June 27, 2016 at 2:16 pm
      Andrew1725
      Participant

      I got areas of white patches on my back from Interferon. I later progressed to Stage 4, but as Janner said vitiligo from immunotherapy treatements is generally considered to be a positive prognostic factor. Try a Google Search for "Vitiligo Immunotherapy".

       

      • June 27, 2016 at 2:16 pm
      Andrew1725
      Participant

      I got areas of white patches on my back from Interferon. I later progressed to Stage 4, but as Janner said vitiligo from immunotherapy treatements is generally considered to be a positive prognostic factor. Try a Google Search for "Vitiligo Immunotherapy".

       

      • June 27, 2016 at 2:16 pm
      Andrew1725
      Participant

      I got areas of white patches on my back from Interferon. I later progressed to Stage 4, but as Janner said vitiligo from immunotherapy treatements is generally considered to be a positive prognostic factor. Try a Google Search for "Vitiligo Immunotherapy".

       

      • June 28, 2016 at 10:30 pm
      Bubbles
      Participant

      Vitiligo has long been recognized as a positive sign regarding a good response to melanoma. Rarely, (and there was more documentation/attention on this prior to 2010 and any viable melanoma treatments) folks were rid themselves of melanoma via their own immune response and those folks often presented with vitiligo. In these later years we have determined that folks with vitiligo….subsequent to many different melanoma therapies….often have a better outcome than those who do not.  Here is a post with many different links within:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/11/vitiligoagain-associated-with-response.html

      Celeste

      • June 28, 2016 at 10:30 pm
      Bubbles
      Participant

      Vitiligo has long been recognized as a positive sign regarding a good response to melanoma. Rarely, (and there was more documentation/attention on this prior to 2010 and any viable melanoma treatments) folks were rid themselves of melanoma via their own immune response and those folks often presented with vitiligo. In these later years we have determined that folks with vitiligo….subsequent to many different melanoma therapies….often have a better outcome than those who do not.  Here is a post with many different links within:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/11/vitiligoagain-associated-with-response.html

      Celeste

      • June 28, 2016 at 10:30 pm
      Bubbles
      Participant

      Vitiligo has long been recognized as a positive sign regarding a good response to melanoma. Rarely, (and there was more documentation/attention on this prior to 2010 and any viable melanoma treatments) folks were rid themselves of melanoma via their own immune response and those folks often presented with vitiligo. In these later years we have determined that folks with vitiligo….subsequent to many different melanoma therapies….often have a better outcome than those who do not.  Here is a post with many different links within:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/11/vitiligoagain-associated-with-response.html

      Celeste

        • June 30, 2016 at 1:38 am
        Rita and Charles
        Participant

        Thank you – I will take it as good signs!!!

        • June 30, 2016 at 1:38 am
        Rita and Charles
        Participant

        Thank you – I will take it as good signs!!!

        • June 30, 2016 at 1:38 am
        Rita and Charles
        Participant

        Thank you – I will take it as good signs!!!

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