Great scans!!! Breast cancer drug working!!!
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Great scans!!! Breast cancer drug working!!!

› Forums › General Melanoma Community › Great scans!!! Breast cancer drug working!!!

  • Post
    • February 10, 2016 at 12:31 am
    Maureen038
    Participant

    Hi All,

        My husband has been stage 4 for three and a half years. He has had many treatments and he was almost NED last spring from the Ipi/Nivo trial when he had two new lung nodules. After seeing several top melanoma specialists only one had a novel idea. At Sloan Kettering they are using old chemo drugs that are showing results especially after using a pd1 drug. Bill had two pill doses of DTIC and while he had very good scans, he was in the hospital for 9 days due to neutropenia. After that we found out he had the her-2 mutation which is extremely rare in melanoma. He has had 2 infusions of TDM1 which we have had to pay for out of pocket because it's not FDA approved for melanoma(very, very expensive). We just had his first scans and we are so thrilled that his lung nodules have shrunk and his fluid in his lungs have gone from moderate to mild. We are SO thrilled and feel that you should always keep fighting!!! We know we're not out of the woods, but we feel so happy that we have made progress. Life is so precious and we plan on living each day fully!!!! We wish all of you the best!!

    Maureen

Viewing 11 reply threads
  • Replies
      • February 10, 2016 at 12:51 am
      DZnDef
      Participant

      Great news, Maureen!  It's amazing what can happen when doctors are allowed to get a little creative.  I hope this is the beginning of a full recovery!

      • February 10, 2016 at 12:51 am
      DZnDef
      Participant

      Great news, Maureen!  It's amazing what can happen when doctors are allowed to get a little creative.  I hope this is the beginning of a full recovery!

        • February 10, 2016 at 12:19 pm
        Maureen038
        Participant

        Thanks so much Maggie! I'm so sorry about your brother's diagnosis. I wish you both the best! I forgot to mention that those that progress after pd1 and use a chemo drug next can try to use the other pd1 drug(depending on which one you used, opdivo or keytruda) and sometimes it will be effective. It's definitely worth a try. Through this whole experience, we have sought out melanoma specialists that think outside of the box and it's definitely helped.

        Maureen

        • February 10, 2016 at 12:19 pm
        Maureen038
        Participant

        Thanks so much Maggie! I'm so sorry about your brother's diagnosis. I wish you both the best! I forgot to mention that those that progress after pd1 and use a chemo drug next can try to use the other pd1 drug(depending on which one you used, opdivo or keytruda) and sometimes it will be effective. It's definitely worth a try. Through this whole experience, we have sought out melanoma specialists that think outside of the box and it's definitely helped.

        Maureen

        • February 10, 2016 at 12:19 pm
        Maureen038
        Participant

        Thanks so much Maggie! I'm so sorry about your brother's diagnosis. I wish you both the best! I forgot to mention that those that progress after pd1 and use a chemo drug next can try to use the other pd1 drug(depending on which one you used, opdivo or keytruda) and sometimes it will be effective. It's definitely worth a try. Through this whole experience, we have sought out melanoma specialists that think outside of the box and it's definitely helped.

        Maureen

      • February 10, 2016 at 12:51 am
      DZnDef
      Participant

      Great news, Maureen!  It's amazing what can happen when doctors are allowed to get a little creative.  I hope this is the beginning of a full recovery!

      • February 10, 2016 at 2:33 pm
      BrianP
      Participant

      YAY!!!  So happy for you all Maureen.  I love the way MSK thinks outside the box.  I had a consult with Dr. Wolchok a few weeks ago and he mentioned chemo post immunotherapy as something they've seen some remarkable results with.  Hope the good news keeps rolling for you all.

      Brian

      • February 10, 2016 at 2:33 pm
      BrianP
      Participant

      YAY!!!  So happy for you all Maureen.  I love the way MSK thinks outside the box.  I had a consult with Dr. Wolchok a few weeks ago and he mentioned chemo post immunotherapy as something they've seen some remarkable results with.  Hope the good news keeps rolling for you all.

      Brian

        • February 10, 2016 at 9:57 pm
        Maureen038
        Participant

        Thanks so much Brian!! I'm so happy that you're doing well!! Thanks for all you do for this board!!

        Maureen

        • February 10, 2016 at 9:57 pm
        Maureen038
        Participant

        Thanks so much Brian!! I'm so happy that you're doing well!! Thanks for all you do for this board!!

        Maureen

        • February 10, 2016 at 9:57 pm
        Maureen038
        Participant

        Thanks so much Brian!! I'm so happy that you're doing well!! Thanks for all you do for this board!!

        Maureen

      • February 10, 2016 at 2:33 pm
      BrianP
      Participant

      YAY!!!  So happy for you all Maureen.  I love the way MSK thinks outside the box.  I had a consult with Dr. Wolchok a few weeks ago and he mentioned chemo post immunotherapy as something they've seen some remarkable results with.  Hope the good news keeps rolling for you all.

      Brian

      • February 10, 2016 at 2:33 pm
      Bubbles
      Participant

      That is great, Maureen! You were both due some good news. Fingers crossed for continued improvement! C

      • February 10, 2016 at 2:33 pm
      Bubbles
      Participant

      That is great, Maureen! You were both due some good news. Fingers crossed for continued improvement! C

        • February 10, 2016 at 6:49 pm
        Brendan
        Participant

        Thanks for sharing, Maureen.  Hoping for continued success.

        Brendan

        • February 10, 2016 at 6:49 pm
        Brendan
        Participant

        Thanks for sharing, Maureen.  Hoping for continued success.

        Brendan

        • February 10, 2016 at 10:02 pm
        Maureen038
        Participant

        Thanks Brendan !!!!

        Maureen

        • February 10, 2016 at 10:02 pm
        Maureen038
        Participant

        Thanks Brendan !!!!

        Maureen

        • February 10, 2016 at 10:02 pm
        Maureen038
        Participant

        Thanks Brendan !!!!

        Maureen

        • February 10, 2016 at 6:49 pm
        Brendan
        Participant

        Thanks for sharing, Maureen.  Hoping for continued success.

        Brendan

        • February 10, 2016 at 10:00 pm
        Maureen038
        Participant

        Celeste,

            You're such an integral part of this board!!! I thank you so much for your well wishes and all you do to educate others.You rock!!!

        Maureen

        • February 10, 2016 at 10:00 pm
        Maureen038
        Participant

        Celeste,

            You're such an integral part of this board!!! I thank you so much for your well wishes and all you do to educate others.You rock!!!

        Maureen

        • February 10, 2016 at 10:00 pm
        Maureen038
        Participant

        Celeste,

            You're such an integral part of this board!!! I thank you so much for your well wishes and all you do to educate others.You rock!!!

        Maureen

      • February 10, 2016 at 2:33 pm
      Bubbles
      Participant

      That is great, Maureen! You were both due some good news. Fingers crossed for continued improvement! C

      • February 10, 2016 at 7:41 pm
      WithinMySkin
      Participant
      Fantastic news, Maureen! Glad to hear that taking a chance and thinking outside the box really worked! Keep up the good fight!!
      • February 10, 2016 at 7:41 pm
      WithinMySkin
      Participant
      Fantastic news, Maureen! Glad to hear that taking a chance and thinking outside the box really worked! Keep up the good fight!!
        • February 10, 2016 at 10:01 pm
        Maureen038
        Participant

        Thanks so much!!!

        • February 10, 2016 at 10:01 pm
        Maureen038
        Participant

        Thanks so much!!!

        • February 10, 2016 at 10:01 pm
        Maureen038
        Participant

        Thanks so much!!!

      • February 10, 2016 at 7:41 pm
      WithinMySkin
      Participant
      Fantastic news, Maureen! Glad to hear that taking a chance and thinking outside the box really worked! Keep up the good fight!!
Viewing 11 reply threads
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