Radiation After Effects
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Radiation After Effects

› Forums › General Melanoma Community › Radiation After Effects

  • Post
    • March 3, 2015 at 1:28 pm
    porrige
    Participant

    Hello Guys,

    My sister is just after finishing her two weeks of whole brain radiation and recovering at home, I am so worried about her as her husband has told me that she is completely exhausted has terrible headaches and no mind to talk to anyone and she is  so fatigued. The poor man is so worried about her, and we her family are so helpless to do anything as she lives in Australia and we live in Europe. Its heart breaking for us as we are so powerless to help them right now, and all we can do is send messages, hope and pray. If anyone here has had radiation for Mets to the Brain, can you tell me if these symptoms are from the radiation and if they are will she be like this for long, she is hoping to start a new drug treatment as soon as she settles. She has been through so much recently, with the seizures and exhaustion and missing everyone, I would love to be able to just find out some more so that I can share with her amazing husband who is solely nursing her at the moment.Thanking you all.

Viewing 8 reply threads
  • Replies
      • March 3, 2015 at 1:43 pm
      arthurjedi007
      Participant

      I've had radiation to a tumor pressing on my brain and lots of other radiation so not quite the same thing. Radiation can knock you down sapping your strength. But for me by two weeks I have always gotten better. Nowhere near what I was before radiation but at least better. It sounds like something might not be going quite right. But again I haven't had that type of radiation so others here probably know better than me.

      Artie

      • March 3, 2015 at 1:43 pm
      arthurjedi007
      Participant

      I've had radiation to a tumor pressing on my brain and lots of other radiation so not quite the same thing. Radiation can knock you down sapping your strength. But for me by two weeks I have always gotten better. Nowhere near what I was before radiation but at least better. It sounds like something might not be going quite right. But again I haven't had that type of radiation so others here probably know better than me.

      Artie

      • March 3, 2015 at 1:43 pm
      arthurjedi007
      Participant

      I've had radiation to a tumor pressing on my brain and lots of other radiation so not quite the same thing. Radiation can knock you down sapping your strength. But for me by two weeks I have always gotten better. Nowhere near what I was before radiation but at least better. It sounds like something might not be going quite right. But again I haven't had that type of radiation so others here probably know better than me.

      Artie

      • March 4, 2015 at 7:59 am
      Patina
      Participant
      My Mom had gamma knife radiation for brain mets. 8 in Dec of 2013 and 17 in April of 2015. She was sore but back to normal in days.

      Her doctors never talked to us about whole brain. I am not sure why, but I saw a article about it not being as effective as gamma knife over the long term. Look at the posts I have replied to and you will find a link to a recent article I posted. Also, there was a small trial on patients who had gamma knife with and without canabinoids – found in marijanna. There seemed to be decent evidence that it had a very large benefit.

      Two things for you to look into.

      My Mom had gamma knife just before getting Yervoy. Simply amazing results.

      Good luck,ď

      • March 4, 2015 at 7:59 am
      Patina
      Participant
      My Mom had gamma knife radiation for brain mets. 8 in Dec of 2013 and 17 in April of 2015. She was sore but back to normal in days.

      Her doctors never talked to us about whole brain. I am not sure why, but I saw a article about it not being as effective as gamma knife over the long term. Look at the posts I have replied to and you will find a link to a recent article I posted. Also, there was a small trial on patients who had gamma knife with and without canabinoids – found in marijanna. There seemed to be decent evidence that it had a very large benefit.

      Two things for you to look into.

      My Mom had gamma knife just before getting Yervoy. Simply amazing results.

      Good luck,ď

      • March 4, 2015 at 7:59 am
      Patina
      Participant
      My Mom had gamma knife radiation for brain mets. 8 in Dec of 2013 and 17 in April of 2015. She was sore but back to normal in days.

      Her doctors never talked to us about whole brain. I am not sure why, but I saw a article about it not being as effective as gamma knife over the long term. Look at the posts I have replied to and you will find a link to a recent article I posted. Also, there was a small trial on patients who had gamma knife with and without canabinoids – found in marijanna. There seemed to be decent evidence that it had a very large benefit.

      Two things for you to look into.

      My Mom had gamma knife just before getting Yervoy. Simply amazing results.

      Good luck,ď

      • March 4, 2015 at 2:05 pm
      ed williams
      Participant

      If you take a look at a post from jerryfromFauq dated 2/5/2015, it talks about a new trial in Australia run by Prof. Georgina Long of the MIA Poche Centre. It talks about access to Pd-1 drugs for people who have active brain mets. I hope this was of some help. ED

      • March 4, 2015 at 2:05 pm
      ed williams
      Participant

      If you take a look at a post from jerryfromFauq dated 2/5/2015, it talks about a new trial in Australia run by Prof. Georgina Long of the MIA Poche Centre. It talks about access to Pd-1 drugs for people who have active brain mets. I hope this was of some help. ED

      • March 4, 2015 at 2:05 pm
      ed williams
      Participant

      If you take a look at a post from jerryfromFauq dated 2/5/2015, it talks about a new trial in Australia run by Prof. Georgina Long of the MIA Poche Centre. It talks about access to Pd-1 drugs for people who have active brain mets. I hope this was of some help. ED

        • March 4, 2015 at 4:53 pm
        porrige
        Participant

        Thank you all for responding, your replys are like gifts to me. I will look into all you have suggested, its just so

        lonely and frustrating for me at the moment, cause all I want to do is hold her close to me and smell her sisterly scent and tell her I love her so much and wish I could take all this pain from her. I am hopefull from what I have read that she is suffering from odema of the brain as a result of the radiation, which probably accounts for her headaches and low feelings, she has never not spoken to me since all this started five years ago, so it shows me how fatigued the poor lamb is, but I have still kept my messages going, even if she cannot talk to me or message me I told her I am with her in heart and spirit all the way. I know I will have to allow time, time for her to heal and be back to her ole self again, someone told me last night that we the family and friends of the patient get worried so much when we see how poorly our loved ones are doing, that we forget that what we are actually witnessing, is the treatment plan in action with all its side effects and such, and that once we allow this to take place we will see that its actually the treatment we are looking at and not the actual cancer. Love to you all you,      you amazing warriors

         

        • March 4, 2015 at 4:53 pm
        porrige
        Participant

        Thank you all for responding, your replys are like gifts to me. I will look into all you have suggested, its just so

        lonely and frustrating for me at the moment, cause all I want to do is hold her close to me and smell her sisterly scent and tell her I love her so much and wish I could take all this pain from her. I am hopefull from what I have read that she is suffering from odema of the brain as a result of the radiation, which probably accounts for her headaches and low feelings, she has never not spoken to me since all this started five years ago, so it shows me how fatigued the poor lamb is, but I have still kept my messages going, even if she cannot talk to me or message me I told her I am with her in heart and spirit all the way. I know I will have to allow time, time for her to heal and be back to her ole self again, someone told me last night that we the family and friends of the patient get worried so much when we see how poorly our loved ones are doing, that we forget that what we are actually witnessing, is the treatment plan in action with all its side effects and such, and that once we allow this to take place we will see that its actually the treatment we are looking at and not the actual cancer. Love to you all you,      you amazing warriors

         

        • March 4, 2015 at 4:53 pm
        porrige
        Participant

        Thank you all for responding, your replys are like gifts to me. I will look into all you have suggested, its just so

        lonely and frustrating for me at the moment, cause all I want to do is hold her close to me and smell her sisterly scent and tell her I love her so much and wish I could take all this pain from her. I am hopefull from what I have read that she is suffering from odema of the brain as a result of the radiation, which probably accounts for her headaches and low feelings, she has never not spoken to me since all this started five years ago, so it shows me how fatigued the poor lamb is, but I have still kept my messages going, even if she cannot talk to me or message me I told her I am with her in heart and spirit all the way. I know I will have to allow time, time for her to heal and be back to her ole self again, someone told me last night that we the family and friends of the patient get worried so much when we see how poorly our loved ones are doing, that we forget that what we are actually witnessing, is the treatment plan in action with all its side effects and such, and that once we allow this to take place we will see that its actually the treatment we are looking at and not the actual cancer. Love to you all you,      you amazing warriors

         

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