zephyr66

hi ali –

you have probably already made your decision by now but thought i would give my thoughts.  my partner is 44, athletic, strong and was diagnosed stage 4 with inoperable spinal tumors.  we went the zelboraf route.  although for some the side effects can be rough, she (like many others) have found that below the suggested dose is doing a great job.  4 pills/2 x day is suggested but she is on 2 pills/2x day and the spinal tumors have shrunk and tumors in lung have shrunk giving her the ability to almost get off morphine and get back to a lot of her life.  i have heard that IL2 is a VERY toxic and older treatment and if you test positive for BRAF then that is a good way to go.  zelboraf has a high success rate and although it doesn't keep working, it can give you the time you need to think of your next line of attack.  just my two cents.  hope you're doing well.

sylvia

hi ali –

you have probably already made your decision by now but thought i would give my thoughts.  my partner is 44, athletic, strong and was diagnosed stage 4 with inoperable spinal tumors.  we went the zelboraf route.  although for some the side effects can be rough, she (like many others) have found that below the suggested dose is doing a great job.  4 pills/2 x day is suggested but she is on 2 pills/2x day and the spinal tumors have shrunk and tumors in lung have shrunk giving her the ability to almost get off morphine and get back to a lot of her life.  i have heard that IL2 is a VERY toxic and older treatment and if you test positive for BRAF then that is a good way to go.  zelboraf has a high success rate and although it doesn't keep working, it can give you the time you need to think of your next line of attack.  just my two cents.  hope you're doing well.

sylvia

hi ali –

you have probably already made your decision by now but thought i would give my thoughts.  my partner is 44, athletic, strong and was diagnosed stage 4 with inoperable spinal tumors.  we went the zelboraf route.  although for some the side effects can be rough, she (like many others) have found that below the suggested dose is doing a great job.  4 pills/2 x day is suggested but she is on 2 pills/2x day and the spinal tumors have shrunk and tumors in lung have shrunk giving her the ability to almost get off morphine and get back to a lot of her life.  i have heard that IL2 is a VERY toxic and older treatment and if you test positive for BRAF then that is a good way to go.  zelboraf has a high success rate and although it doesn't keep working, it can give you the time you need to think of your next line of attack.  just my two cents.  hope you're doing well.

sylvia

hi kevin… how are you doing?  pretty new to this site.  i'm in san diego also and partner has stage 4 as well.  hope you're tolerating the new drug well and look forward to new updates.

sylvia

hi kevin… how are you doing?  pretty new to this site.  i'm in san diego also and partner has stage 4 as well.  hope you're tolerating the new drug well and look forward to new updates.

sylvia

hi kevin… how are you doing?  pretty new to this site.  i'm in san diego also and partner has stage 4 as well.  hope you're tolerating the new drug well and look forward to new updates.

sylvia

mary… i don't see a profile for you or any way i can respond off the thread to answer your question.  whey you get a profile where i can respond, please let me know and i'll share.  thanks!

sylvia

mary… i don't see a profile for you or any way i can respond off the thread to answer your question.  whey you get a profile where i can respond, please let me know and i'll share.  thanks!

sylvia

mary… i don't see a profile for you or any way i can respond off the thread to answer your question.  whey you get a profile where i can respond, please let me know and i'll share.  thanks!

sylvia