Willowcaregiver
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Willowcaregiver

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • April 25, 2017 at 6:06 am
      Willowcaregiver
      Participant
      Thanks for sharing, I am glad you are stable, it gives me more hope! His were 11 days apart. It was 1 week today, since his 2nd one. He was pretty pumped up on steriods and pain meds too for the first few days, but they tapered him off the dex pretty fast. The past couple days he has mostly slept. His dr. Plans to do SRS Radiation to the area of the resected bleeds/tumors and the 1 remaining lesion in about 4 weeks. They want to resume pembro and temodar as soon as possible too. Did you take the temodar? Do/did you have tumors elsewhere in your body?
      • April 23, 2017 at 6:55 pm
      Willowcaregiver
      Participant
      He is not braf positive and he was having pembro infusions and taking temodar on a 21 day cycle until about 9 weeks ago when labs and ulcerative colitis hospitalized him. I think they plan to resume those once his toxicity from the drugs is back at a safe level again. I am just wondering if anyone else had had 2 bleeding lesions so close together because the surgeon said it was so rare.
Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics