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wendipam

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      wendipam
      Participant

        Where are you being treated? I hope that chemo wasn't a pushed option. So many other options are better. Have you been tested to find out if your braf positive or negative? Also Ckit? I would lookup a great Facebook group, "Mucosal Melanoma Warriors"

        Lots of great advice, guidance and support from this special group. 

        Wishing you the best! 

        Wendy XO

          wendipam
          Participant

            Sorry I just saw your clinic location. 

            wendipam
            Participant

              Sorry I just saw your clinic location. 

              wendipam
              Participant

                Sorry I just saw your clinic location. 

              wendipam
              Participant

                Where are you being treated? I hope that chemo wasn't a pushed option. So many other options are better. Have you been tested to find out if your braf positive or negative? Also Ckit? I would lookup a great Facebook group, "Mucosal Melanoma Warriors"

                Lots of great advice, guidance and support from this special group. 

                Wishing you the best! 

                Wendy XO

                wendipam
                Participant

                  Where are you being treated? I hope that chemo wasn't a pushed option. So many other options are better. Have you been tested to find out if your braf positive or negative? Also Ckit? I would lookup a great Facebook group, "Mucosal Melanoma Warriors"

                  Lots of great advice, guidance and support from this special group. 

                  Wishing you the best! 

                  Wendy XO

                  wendipam
                  Participant

                    Hi Josh,

                    I've been following you since the day you came to this board. I'm just a follower now after losing my mom to melanoma. I never want to put fear in anyone. She just had an exstremly odd case. 

                    Now, do you follow T.J Sharpe, "Patient #1 blog." He's a guy close to you in age. I know that he was just at several amazing melanoma conferences this past week. Below is his lastest blog. He's definitly someone that knows the lastest treaments and what's next on the horizon. I think he's pretty amazing as a stage IV patient himself he's pretty special. 

                    I know you're in great hand with your team, Melanoma has nothing on you! You;ve done great on all of you past treatments. I hate that you're here again, but I know it's only up from here. Wishing you the best Josh. Look for T.J. if you haven't connected yet! 

                    blog. http//www.philly.com/philly/blogs/patient1/A-FasterBlog-for-FasterCures.html

                    wendipam
                    Participant

                      Hi Josh,

                      I've been following you since the day you came to this board. I'm just a follower now after losing my mom to melanoma. I never want to put fear in anyone. She just had an exstremly odd case. 

                      Now, do you follow T.J Sharpe, "Patient #1 blog." He's a guy close to you in age. I know that he was just at several amazing melanoma conferences this past week. Below is his lastest blog. He's definitly someone that knows the lastest treaments and what's next on the horizon. I think he's pretty amazing as a stage IV patient himself he's pretty special. 

                      I know you're in great hand with your team, Melanoma has nothing on you! You;ve done great on all of you past treatments. I hate that you're here again, but I know it's only up from here. Wishing you the best Josh. Look for T.J. if you haven't connected yet! 

                      blog. http//www.philly.com/philly/blogs/patient1/A-FasterBlog-for-FasterCures.html

                      wendipam
                      Participant

                        Hi Josh,

                        I've been following you since the day you came to this board. I'm just a follower now after losing my mom to melanoma. I never want to put fear in anyone. She just had an exstremly odd case. 

                        Now, do you follow T.J Sharpe, "Patient #1 blog." He's a guy close to you in age. I know that he was just at several amazing melanoma conferences this past week. Below is his lastest blog. He's definitly someone that knows the lastest treaments and what's next on the horizon. I think he's pretty amazing as a stage IV patient himself he's pretty special. 

                        I know you're in great hand with your team, Melanoma has nothing on you! You;ve done great on all of you past treatments. I hate that you're here again, but I know it's only up from here. Wishing you the best Josh. Look for T.J. if you haven't connected yet! 

                        blog. http//www.philly.com/philly/blogs/patient1/A-FasterBlog-for-FasterCures.html

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