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Twags66

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      Twags66
      Participant

        Tom,

        You are not alone. Although getting it in the eye is rare, I was also diagnosed with it in my right eye in April of 2009. I was told to get a PET scan to make sure it was not anywhere else. You will have to get MRI's of your liver and lungs every six months and bloodwork also with liver function tests for the rest of your life. In May of 2009, I had the PET scan, took forever to schedule and get approved thru my insurance company. Once approved, I had it done and found no signs of cancer anywhere else. I flew to Philadelphia, PA per my Retina Specialist's orders to see Dr. Carol Shields at Wills Eye Hospital. There I was told I had to have radioplaque therapy. As scary as it sounded, I was willing to do what I had to, to get it out of me. I even accepted the fact that if they had to remove the entire eye, they could. I wanted to live. I had the radioplaque surgery on 5/21/09, had the removal on 5/25/09. Returned home the very next day, returned to work 4 days later. I wear sunglasses outside at all times in the daytime, as I live in Florida. I try to watch what I eat, it is still a struggle to this day, I take vitamins and vitamin D suppliments. I drink water now, no soda. I friended a few others on the Eye Cancer Facebook site. We share our stories and support. I am here if you have any questions. You can email me at [email protected] if you have questions. I am since then clear of cancer to my knowledge. I still have to fight my doctors and insurance companies to get the tests and then to get them approved. I am in $10,000 medical debt due to insurance company not wanting to pay for everything. It is growing and I have accepted that. I have medical bills in collections and I am not proud of it, but I can only handle what I can handle. I am 45 years old and fighting to protect myself and it is something that I will have to do for the rest of my life. I want to see my children graduate college, get married, have children and so on. I am not ready to die. And I am here to talk to if you need me. We need to support each other.

        Sincerely,

        Theresa

        Twags66
        Participant

          Tom,

          You are not alone. Although getting it in the eye is rare, I was also diagnosed with it in my right eye in April of 2009. I was told to get a PET scan to make sure it was not anywhere else. You will have to get MRI's of your liver and lungs every six months and bloodwork also with liver function tests for the rest of your life. In May of 2009, I had the PET scan, took forever to schedule and get approved thru my insurance company. Once approved, I had it done and found no signs of cancer anywhere else. I flew to Philadelphia, PA per my Retina Specialist's orders to see Dr. Carol Shields at Wills Eye Hospital. There I was told I had to have radioplaque therapy. As scary as it sounded, I was willing to do what I had to, to get it out of me. I even accepted the fact that if they had to remove the entire eye, they could. I wanted to live. I had the radioplaque surgery on 5/21/09, had the removal on 5/25/09. Returned home the very next day, returned to work 4 days later. I wear sunglasses outside at all times in the daytime, as I live in Florida. I try to watch what I eat, it is still a struggle to this day, I take vitamins and vitamin D suppliments. I drink water now, no soda. I friended a few others on the Eye Cancer Facebook site. We share our stories and support. I am here if you have any questions. You can email me at [email protected] if you have questions. I am since then clear of cancer to my knowledge. I still have to fight my doctors and insurance companies to get the tests and then to get them approved. I am in $10,000 medical debt due to insurance company not wanting to pay for everything. It is growing and I have accepted that. I have medical bills in collections and I am not proud of it, but I can only handle what I can handle. I am 45 years old and fighting to protect myself and it is something that I will have to do for the rest of my life. I want to see my children graduate college, get married, have children and so on. I am not ready to die. And I am here to talk to if you need me. We need to support each other.

          Sincerely,

          Theresa

          Twags66
          Participant

            Tom,

            You are not alone. Although getting it in the eye is rare, I was also diagnosed with it in my right eye in April of 2009. I was told to get a PET scan to make sure it was not anywhere else. You will have to get MRI's of your liver and lungs every six months and bloodwork also with liver function tests for the rest of your life. In May of 2009, I had the PET scan, took forever to schedule and get approved thru my insurance company. Once approved, I had it done and found no signs of cancer anywhere else. I flew to Philadelphia, PA per my Retina Specialist's orders to see Dr. Carol Shields at Wills Eye Hospital. There I was told I had to have radioplaque therapy. As scary as it sounded, I was willing to do what I had to, to get it out of me. I even accepted the fact that if they had to remove the entire eye, they could. I wanted to live. I had the radioplaque surgery on 5/21/09, had the removal on 5/25/09. Returned home the very next day, returned to work 4 days later. I wear sunglasses outside at all times in the daytime, as I live in Florida. I try to watch what I eat, it is still a struggle to this day, I take vitamins and vitamin D suppliments. I drink water now, no soda. I friended a few others on the Eye Cancer Facebook site. We share our stories and support. I am here if you have any questions. You can email me at [email protected] if you have questions. I am since then clear of cancer to my knowledge. I still have to fight my doctors and insurance companies to get the tests and then to get them approved. I am in $10,000 medical debt due to insurance company not wanting to pay for everything. It is growing and I have accepted that. I have medical bills in collections and I am not proud of it, but I can only handle what I can handle. I am 45 years old and fighting to protect myself and it is something that I will have to do for the rest of my life. I want to see my children graduate college, get married, have children and so on. I am not ready to die. And I am here to talk to if you need me. We need to support each other.

            Sincerely,

            Theresa

            Twags66
            Participant

              Tom,

              You are not alone. Although getting it in the eye is rare, I was also diagnosed with it in my right eye in April of 2009. I was told to get a PET scan to make sure it was not anywhere else. You will have to get MRI's of your liver and lungs every six months and bloodwork also with liver function tests for the rest of your life. In May of 2009, I had the PET scan, took forever to schedule and get approved thru my insurance company. Once approved, I had it done and found no signs of cancer anywhere else. I flew to Philadelphia, PA per my Retina Specialist's orders to see Dr. Carol Shields at Wills Eye Hospital. There I was told I had to have radioplaque therapy. As scary as it sounded, I was willing to do what I had to, to get it out of me. I even accepted the fact that if they had to remove the entire eye, they could. I wanted to live. I had the radioplaque surgery on 5/21/09, had the removal on 5/25/09. Returned home the very next day, returned to work 4 days later. I wear sunglasses outside at all times in the daytime, as I live in Florida. I try to watch what I eat, it is still a struggle to this day, I take vitamins and vitamin D suppliments. I drink water now, no soda. I friended a few others on the Eye Cancer Facebook site. We share our stories and support. I am here if you have any questions. You can email me at [email protected] if you have questions. I am since then clear of cancer to my knowledge. I still have to fight my doctors and insurance companies to get the tests and then to get them approved. I am in $10,000 medical debt due to insurance company not wanting to pay for everything. It is growing and I have accepted that. I have medical bills in collections and I am not proud of it, but I can only handle what I can handle. I am 45 years old and fighting to protect myself and it is something that I will have to do for the rest of my life. I want to see my children graduate college, get married, have children and so on. I am not ready to die. And I am here to talk to if you need me. We need to support each other.

              Sincerely,

              Theresa

              Twags66
              Participant

                Tom,

                You are not alone. Although getting it in the eye is rare, I was also diagnosed with it in my right eye in April of 2009. I was told to get a PET scan to make sure it was not anywhere else. You will have to get MRI's of your liver and lungs every six months and bloodwork also with liver function tests for the rest of your life. In May of 2009, I had the PET scan, took forever to schedule and get approved thru my insurance company. Once approved, I had it done and found no signs of cancer anywhere else. I flew to Philadelphia, PA per my Retina Specialist's orders to see Dr. Carol Shields at Wills Eye Hospital. There I was told I had to have radioplaque therapy. As scary as it sounded, I was willing to do what I had to, to get it out of me. I even accepted the fact that if they had to remove the entire eye, they could. I wanted to live. I had the radioplaque surgery on 5/21/09, had the removal on 5/25/09. Returned home the very next day, returned to work 4 days later. I wear sunglasses outside at all times in the daytime, as I live in Florida. I try to watch what I eat, it is still a struggle to this day, I take vitamins and vitamin D suppliments. I drink water now, no soda. I friended a few others on the Eye Cancer Facebook site. We share our stories and support. I am here if you have any questions. You can email me at [email protected] if you have questions. I am since then clear of cancer to my knowledge. I still have to fight my doctors and insurance companies to get the tests and then to get them approved. I am in $10,000 medical debt due to insurance company not wanting to pay for everything. It is growing and I have accepted that. I have medical bills in collections and I am not proud of it, but I can only handle what I can handle. I am 45 years old and fighting to protect myself and it is something that I will have to do for the rest of my life. I want to see my children graduate college, get married, have children and so on. I am not ready to die. And I am here to talk to if you need me. We need to support each other.

                Sincerely,

                Theresa

                Twags66
                Participant

                  Tom,

                  You are not alone. Although getting it in the eye is rare, I was also diagnosed with it in my right eye in April of 2009. I was told to get a PET scan to make sure it was not anywhere else. You will have to get MRI's of your liver and lungs every six months and bloodwork also with liver function tests for the rest of your life. In May of 2009, I had the PET scan, took forever to schedule and get approved thru my insurance company. Once approved, I had it done and found no signs of cancer anywhere else. I flew to Philadelphia, PA per my Retina Specialist's orders to see Dr. Carol Shields at Wills Eye Hospital. There I was told I had to have radioplaque therapy. As scary as it sounded, I was willing to do what I had to, to get it out of me. I even accepted the fact that if they had to remove the entire eye, they could. I wanted to live. I had the radioplaque surgery on 5/21/09, had the removal on 5/25/09. Returned home the very next day, returned to work 4 days later. I wear sunglasses outside at all times in the daytime, as I live in Florida. I try to watch what I eat, it is still a struggle to this day, I take vitamins and vitamin D suppliments. I drink water now, no soda. I friended a few others on the Eye Cancer Facebook site. We share our stories and support. I am here if you have any questions. You can email me at [email protected] if you have questions. I am since then clear of cancer to my knowledge. I still have to fight my doctors and insurance companies to get the tests and then to get them approved. I am in $10,000 medical debt due to insurance company not wanting to pay for everything. It is growing and I have accepted that. I have medical bills in collections and I am not proud of it, but I can only handle what I can handle. I am 45 years old and fighting to protect myself and it is something that I will have to do for the rest of my life. I want to see my children graduate college, get married, have children and so on. I am not ready to die. And I am here to talk to if you need me. We need to support each other.

                  Sincerely,

                  Theresa

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