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texasgirl

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      texasgirl
      Participant
      Hugs to you and I know how scary this is. My mom was diagnosed stage IV 2 years ago. She’s been on Opdivo 2 years and most/all of her tumors have disappeared. On top of that she’s been lucky to have no side effects. I hope your husband is as lucky! Prayers for you both!
      texasgirl
      Participant
      My mom has been on Opdivo for about 8 months now. She’s had no side effects. Her last scan showed her tumors have not grown and some were even smaller. Fingers crossed things are working! She is Stage IV.
      texasgirl
      Participant
      Thank you, you’ve provided great helpful info!

      Thanks to the previous responder, Steve, too! I’m feeling much better about things.. at least I know what they are!

      texasgirl
      Participant
      I’m so sorry, what a big shock for your family.

      My mom was diagnosed with stage IV last July. Her doctor refused to give a prognosis but Google told me all I needed to know – the outlook isn’t good. However, they started her on Opdivo every two weeks. She’s had zero side effects and her last scan in December showed that the tumors hadn’t grown and some even shrank! She’s due for another scan soon; we are hopeful. I wish we could take this as a positive sign that it will go away and life will go on, but no one knows for sure what it all means. We’re just taking things one day at a time and enjoying as much time together as possible.

      I wish your family the best!

      texasgirl
      Participant

      Hi Ed, thanks for your response!  Yes she has other tumors, one on her shoulder blade, some abdominally and on the lungs.  All small, supposedly.  Her dr. initally said her first scan would be 6 months out (?? Seems a long time!)  so I am relieved one will be done sooner.  I haven't met him but he seems very… evasive? I dont know if that's the right word.. with information.  He wouldn't give her info on life expectancy; follow up scan not for 6 months; "blood work looks fine" but with no specifics.  Unfortunately my mom doesn't push for any more info, she's used to trusting in doctors and takes them at their word, whereas I ask for all my lab reports etc.

       

      Thankfully the only side effect she's had is a minor skin rash that her dr gave her some medication to help with.  She's had no tiredness, aches, or anything.  We're hopeful it stays this way!

       

      Thanks again!

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