TamSchubert

Thank you for sharing, and I completely understand where you are coming from. When they first biopsied the nodes on the right side they took 8 out (which I think is considered a partial axillary dissection) & only one came back positive. The surgeon didn't suspect any more would be positive, but we elected to go back in for the full dissection anyway… 19 negative nodes later my husband is now down 28 nodes on that side & we both realize in hindsight we may have jumped the gun in opting for the complete dissection. But hey, better safe than sorry right? Its always such a tough call when you just don't know what to expect!

My level of worry is why we are getting him into a specialist this month at MDA – being pregnant with our first has me just incessantly worried when it comes to long term survival. Especially with what the current 5 & 10 year stats are (although I know they aren't indicative of current treatments, and should be taken lightly). Thank you for the reassurance about the lung nodules, I hope you are right!! 🙂

Thank you for sharing, and I completely understand where you are coming from. When they first biopsied the nodes on the right side they took 8 out (which I think is considered a partial axillary dissection) & only one came back positive. The surgeon didn't suspect any more would be positive, but we elected to go back in for the full dissection anyway… 19 negative nodes later my husband is now down 28 nodes on that side & we both realize in hindsight we may have jumped the gun in opting for the complete dissection. But hey, better safe than sorry right? Its always such a tough call when you just don't know what to expect!

My level of worry is why we are getting him into a specialist this month at MDA – being pregnant with our first has me just incessantly worried when it comes to long term survival. Especially with what the current 5 & 10 year stats are (although I know they aren't indicative of current treatments, and should be taken lightly). Thank you for the reassurance about the lung nodules, I hope you are right!! 🙂

Thank you for sharing, and I completely understand where you are coming from. When they first biopsied the nodes on the right side they took 8 out (which I think is considered a partial axillary dissection) & only one came back positive. The surgeon didn't suspect any more would be positive, but we elected to go back in for the full dissection anyway… 19 negative nodes later my husband is now down 28 nodes on that side & we both realize in hindsight we may have jumped the gun in opting for the complete dissection. But hey, better safe than sorry right? Its always such a tough call when you just don't know what to expect!

My level of worry is why we are getting him into a specialist this month at MDA – being pregnant with our first has me just incessantly worried when it comes to long term survival. Especially with what the current 5 & 10 year stats are (although I know they aren't indicative of current treatments, and should be taken lightly). Thank you for the reassurance about the lung nodules, I hope you are right!! 🙂

Thank you, reading this definitely has helped calm my nerves a bit. I agree, and I can't wait to hear what the melanoma specialist says. He has been in with a great surgical oncologist & medical oncologist thus far at the CTRC, but I will feel a LOT better with him in the hands of a specialist. His medical oncologist offered interferon or a clinical trial, but didn't really encourage either one yet. We all were on board with the wait and see approach for now.

Thank you so much for your help!

Thank you, reading this definitely has helped calm my nerves a bit. I agree, and I can't wait to hear what the melanoma specialist says. He has been in with a great surgical oncologist & medical oncologist thus far at the CTRC, but I will feel a LOT better with him in the hands of a specialist. His medical oncologist offered interferon or a clinical trial, but didn't really encourage either one yet. We all were on board with the wait and see approach for now.

Thank you so much for your help!

Thank you, reading this definitely has helped calm my nerves a bit. I agree, and I can't wait to hear what the melanoma specialist says. He has been in with a great surgical oncologist & medical oncologist thus far at the CTRC, but I will feel a LOT better with him in the hands of a specialist. His medical oncologist offered interferon or a clinical trial, but didn't really encourage either one yet. We all were on board with the wait and see approach for now.

Thank you so much for your help!

We were told the same regarding the biopsy, although I was hoping that the one that was 9mm would be large enough to test! I'm hoping my husband's lung spots also don't change, the rescan is on March 29, and yes, this was their baseline scan.

What was y'all's progress of treatment when it turned out that he had a lung met? Did they sequence it to determine the gene mutations? Or was that done to the primary tumor? We are very new to the melanoma game, and haven't seen a melanoma specialist yet… MD Anderson should be scheduling us with one this month though.

Your post definitely does help, thank you so much for your insight.

We were told the same regarding the biopsy, although I was hoping that the one that was 9mm would be large enough to test! I'm hoping my husband's lung spots also don't change, the rescan is on March 29, and yes, this was their baseline scan.

What was y'all's progress of treatment when it turned out that he had a lung met? Did they sequence it to determine the gene mutations? Or was that done to the primary tumor? We are very new to the melanoma game, and haven't seen a melanoma specialist yet… MD Anderson should be scheduling us with one this month though.

Your post definitely does help, thank you so much for your insight.

We were told the same regarding the biopsy, although I was hoping that the one that was 9mm would be large enough to test! I'm hoping my husband's lung spots also don't change, the rescan is on March 29, and yes, this was their baseline scan.

What was y'all's progress of treatment when it turned out that he had a lung met? Did they sequence it to determine the gene mutations? Or was that done to the primary tumor? We are very new to the melanoma game, and haven't seen a melanoma specialist yet… MD Anderson should be scheduling us with one this month though.

Your post definitely does help, thank you so much for your insight.

Thank you, your story certainly helped to ease my nerves a little bit. This is our first rodeo when it comes to scans, so having anything show up was startling/alarming to us. I become especially freaked out as my pregnancy hormones are at insane levels right now & have been since his diagnosis.

Interferon never seemed like a great option to us for all the reasons you all are familar with. I'm curious to see what MDA clinic will suggest. We prefer to do the watch & wait for as long as possible, which is why potentially progressing to the next stage really shook us up. Thank you so much for the insight, I wish you nothing but the best with everything!

Thank you, your story certainly helped to ease my nerves a little bit. This is our first rodeo when it comes to scans, so having anything show up was startling/alarming to us. I become especially freaked out as my pregnancy hormones are at insane levels right now & have been since his diagnosis.

Interferon never seemed like a great option to us for all the reasons you all are familar with. I'm curious to see what MDA clinic will suggest. We prefer to do the watch & wait for as long as possible, which is why potentially progressing to the next stage really shook us up. Thank you so much for the insight, I wish you nothing but the best with everything!

Thank you, your story certainly helped to ease my nerves a little bit. This is our first rodeo when it comes to scans, so having anything show up was startling/alarming to us. I become especially freaked out as my pregnancy hormones are at insane levels right now & have been since his diagnosis.

Interferon never seemed like a great option to us for all the reasons you all are familar with. I'm curious to see what MDA clinic will suggest. We prefer to do the watch & wait for as long as possible, which is why potentially progressing to the next stage really shook us up. Thank you so much for the insight, I wish you nothing but the best with everything!