swqball
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swqball

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      • September 22, 2011 at 9:01 pm
      swqball
      Participant

      Nick,

      Sorry, about the new tumors.You both are trying everything you can. I know radiation has delayed effects. 

      My husband has had a craniotomy, 3 Gamma knives and one Cyberknife. He too has had seizures due to edema after these treatments. Like your wife he is very sensitive to the treatments. He was on temodar for about 18 months. After a new lung tumor they changed him to carboplatin/taxol treatments every 3 weeks. He is having MRIs every month. Yeah, we are in that club together.

      He is also on the steroids. One thing we noticed he had vision problems. His pressure in his eyes are so high, he needs three different kinds of drops to bring it down. It is steroid induced glaucoma.   

      Praying for you and your wife.

      Susan

      • September 22, 2011 at 9:01 pm
      swqball
      Participant

      Nick,

      Sorry, about the new tumors.You both are trying everything you can. I know radiation has delayed effects. 

      My husband has had a craniotomy, 3 Gamma knives and one Cyberknife. He too has had seizures due to edema after these treatments. Like your wife he is very sensitive to the treatments. He was on temodar for about 18 months. After a new lung tumor they changed him to carboplatin/taxol treatments every 3 weeks. He is having MRIs every month. Yeah, we are in that club together.

      He is also on the steroids. One thing we noticed he had vision problems. His pressure in his eyes are so high, he needs three different kinds of drops to bring it down. It is steroid induced glaucoma.   

      Praying for you and your wife.

      Susan

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