The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Suzi

Forum Replies Created

Viewing 1 reply thread
  • Replies
      Suzi
      Participant
      This was not supposed to be anonymous
      Suzi
      Participant
      This is a duplicate please delete
      Suzi
      Participant
      I had Dr. Komotar at university of Miami, best neurosurgeon in the world
      Suzi
      Participant
      Thanks hope so
      Suzi
      Participant
      Why can’t the do surgery? I just had 2 tumors removed from my brain
      Suzi
      Participant
      I have 4 holes from the gamma knife cage, it still hurts and my radiation area is throbbing
      Suzi
      Participant
      Hope it helps, I’m on 25 more days of steroids, hate it.
      My head still hurts from the radiation.
      Suzi
      Participant
      Monday I have a needle biopsy in my lung and then start Immunotherapy. Hope its nothing, had one last year and it was clear. I have nodules, the one the biopsied last year is gone.
      Suzi
      Participant
      Today was awful! Gamma knife radiation.
      So much pain when they took the cage off, have 4 holes and the radiation area hurts as much as surgery. Better after pain pill. They gave me morifine putting on the cage but not taking off. BP was 255/179!
      Suzi
      Participant
      Thanks
      Suzi
      Participant
      Did your wife have any side effects?
      Suzi
      Participant
      Did your wife have any side effects?
      Suzi
      Participant
      I have one of the best melanoma oncologist in south Florida and had the best brain surgeon in the world at university of Miami, Dr Komotar. Luckily my tumors were on the surface, I am having the gamma knife only once to get rid of the microscopic cells leftover from surgery.
      Suzi
      Participant
      Thanks, that sounds much better!
      Suzi
      Participant
      Thanks Celeste, I will check it out. I guess the worst thing I did was google stage IV melanoma. Said 10-20% survivor rate at 5 years.

      I have a needle biopsy in my lung on the 21st.

      I couldn’t find the forum, glad I’m back

Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.