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- January 16, 2011 at 12:33 am
Hi Donna, sorry to hear bout you predicament.
I have been going to MDA since 2007 (diagnosed in 2004) and currently on IPI trial with Dr Papadopolus. Started IPI in 2008. It has been going terrific for me. Several tumors have disappeared and others are still shrinking. Will be going back jan 18 and 19 for scans and treatment.
Best advise is to check out their webpage for info regarding help with various expenses. Several local churches have accomodations also, although i have never used them, i have heard they are nice, but probably hard to get into. There is the rotary house next to MDA connected with skywalks that a lot of people stay in. The area motels give discounted rates and have shuttle services to MDA, but even that can be expensive for an extended stay.
Cannot help with you with the air fare info, we drive in.
MDA is a huge complex of clinics and treatment centers that one can easily get lost in. When i first started going there, i must of have that lost sheep look because the staff was always asking if i needed help getting around. Doctors in their white coats would escort us to our next clinic if they thought we need help. Call it Texas hospitality. They were tremendous. Now my wife and I help others with that lost look get around.
Good luck to you in fighting this beast. Research is giving us new options every day and you have to stay strong.
RJ in Texas
ps. I rarely post, but check out the board regularly
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- January 16, 2011 at 12:33 am
Hi Donna, sorry to hear bout you predicament.
I have been going to MDA since 2007 (diagnosed in 2004) and currently on IPI trial with Dr Papadopolus. Started IPI in 2008. It has been going terrific for me. Several tumors have disappeared and others are still shrinking. Will be going back jan 18 and 19 for scans and treatment.
Best advise is to check out their webpage for info regarding help with various expenses. Several local churches have accomodations also, although i have never used them, i have heard they are nice, but probably hard to get into. There is the rotary house next to MDA connected with skywalks that a lot of people stay in. The area motels give discounted rates and have shuttle services to MDA, but even that can be expensive for an extended stay.
Cannot help with you with the air fare info, we drive in.
MDA is a huge complex of clinics and treatment centers that one can easily get lost in. When i first started going there, i must of have that lost sheep look because the staff was always asking if i needed help getting around. Doctors in their white coats would escort us to our next clinic if they thought we need help. Call it Texas hospitality. They were tremendous. Now my wife and I help others with that lost look get around.
Good luck to you in fighting this beast. Research is giving us new options every day and you have to stay strong.
RJ in Texas
ps. I rarely post, but check out the board regularly
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