The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Steve W

Forum Replies Created

Viewing 1 reply thread
  • Replies
      Steve W
      Participant

      I suspect that genetic testing of melanoma tumors is common now.  I recommend you ask that a sample of the tumor be saved and ask for it to be tested for the Braf mutation.  

      When I started this journey in 2009, interferon and interlukin treatments were the norm.  I went through both.  After several recurrences, a sample of my initial tumor was tested and showed positive for the BRAF mutation.  I am currently in a clinical trial with GSK and am showing some good results with the mets in my lungs, liver and spleen.  Several new treatments that target this mutation have been approved over the last year and more will come in the near future.  Good luck to you.

      Steve W
      Participant

      I suspect that genetic testing of melanoma tumors is common now.  I recommend you ask that a sample of the tumor be saved and ask for it to be tested for the Braf mutation.  

      When I started this journey in 2009, interferon and interlukin treatments were the norm.  I went through both.  After several recurrences, a sample of my initial tumor was tested and showed positive for the BRAF mutation.  I am currently in a clinical trial with GSK and am showing some good results with the mets in my lungs, liver and spleen.  Several new treatments that target this mutation have been approved over the last year and more will come in the near future.  Good luck to you.

      Steve W
      Participant

      thanks

      Steve W
      Participant

      thanks

      Steve W
      Participant

      thanks

      Steve W
      Participant

      Good info….thanks.

      Steve W
      Participant

      Good info….thanks.

Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.