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stephanierm

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      stephanierm
      Participant
        Thank you for your input. We will give UCSF a call and go from there. We live about 3 hours away so i think think that would be a good option for us also. I hope treatment is going well for you. I’m glad you really like UCSF . My brother does also.
        stephanierm
        Participant
          Thank you for all of this information. I really appreciate it. In doing my research I feel like I am still not understanding everything I read, or its getting jumbled and I am not obsorbing everything I should. I feel overwhelmed. I will surely get the genetic testing done and speak with a genetic counselor. Should my husband be tested as well since he has had melanoma also, at age 15. The only other person in his family that has had it other than him is his grandmother on his mom’s side. Is this something our insurance will cover? Even if it doesn’t we will still get the testing, just wondering. I just want to be as prepared and knowedable as I can be for my babies. Thank you, I can’t tell you how much I appreciate everyone’s replys.
          stephanierm
          Participant

            Thank you for your reply. This is what I was worried about, is the genetic factor of my children being predispositioned to getting this awful disease. I am sorry to hear that you got it even with your awareness and sun safety precautions. I hope they do not have to deal with it either but we will make sure they are aware of how serious it is when they get older. Everyone's replays really help and make me see different aspects of the disease. Thanks again and hope all is well

            stephanierm
            Participant

              What cancer center should we go to ? My brothers melanoma specialist is in San Francisco and my dads is in Redding CA at this point. My husband also was seen in SF as a teenager. How do we go about doing all of the testing ? Thank you 

              stephanierm
              Participant

                Thank you for your reply, it subtled some of my anxiety. Also thank you for explaining melanoma the way that you did, it makes a lot of sense how you described it. I will raise my kids exactly how you described and already went online to look for everyday SPF clothing for them and purchased some cute hats! My husband said safe skin care and sun exposure will be just like brushing our teeth in our household now! 

                I really didn't realize that melanoma was so dangerous. I am now awaiting new biopsy results for a few suspicious moles, but am optimistic it was just my heightened anxiety after my brother and dad were just recently diagnosed. 

                Thanks again and hope all is well 

                stephanierm
                Participant

                  Thank you for your reply, my dad just got some kind of finger print test done for genetic testing but we haven't received the results yet, he got it done last Friday and his dermatologist said it takes 3-4 weeks for the results and they would use his results for further research. My husband and I decided we would get our girls tested as well as us. I will post our results when we get them for feedback. Thanks for responding. 

                  stephanierm
                  Participant

                    Just wondering your results from the Guardant 360 test, my entire family has or has had melanoma and my brother and dad are fighting it now andit feels like it's a stand still with stage 3a…maybe this would be a good test for them. Thanks and hope all is well. 

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