Forum Replies Created
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- January 30, 2011 at 10:40 pm
Hi all,
Mrs. Ayres is fighting against a Metastatic melanoma. She needs funding for an operation in Germany.
Here is her story :
35 year old mum diagnosed with metastatic brain tumours. http://www.aletheastory.worpress.com Please make any donations payments to 649-100-033973-8 Adam Peter Ayres – Alpha Bank – Poseidonos Branch
http://www.facebook.com/pages/Aletheas-melanoma-fight/142237025835795
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- January 30, 2011 at 10:40 pm
Hi all,
Mrs. Ayres is fighting against a Metastatic melanoma. She needs funding for an operation in Germany.
Here is her story :
35 year old mum diagnosed with metastatic brain tumours. http://www.aletheastory.worpress.com Please make any donations payments to 649-100-033973-8 Adam Peter Ayres – Alpha Bank – Poseidonos Branch
http://www.facebook.com/pages/Aletheas-melanoma-fight/142237025835795
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- November 16, 2010 at 3:42 pm
Dear all,
Well, the news is that I am going to take Interferon for the next 18 months. It's a low dosis (3ML), from the European protocol. Three differents specialists in Melanoma agreed that is a good decision. I don't consider I have the means to know what is better and what is not for me. I then must be confident in what the doctors say.
It is a fact: alpha interferon works. It has been published in the latest scientific article related to this issue:
http://jnci.oxfordjournals.
org/content/102/7/493.abstract I read the entire article and is clear that the results shows that it woks not only to disease free survival (DFS) but also to overall survival (OS).
So, the question would be : Why I should not take Interferon ? Because of its side-effects than can change my way of life. But the main objective is living, and the side-effects are, from my point of view, a price we can afford . Anyway, I had already changed my way of life when I knew I had a melanoma. It's not terrible, but I have to get used to the idea that my life is risky.
Thanks everybody for the advices ! Hope everything will be ok for us.
Gabriel
P.D. Mark, once again, good luck on 11-19 !
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- November 16, 2010 at 3:42 pm
Dear all,
Well, the news is that I am going to take Interferon for the next 18 months. It's a low dosis (3ML), from the European protocol. Three differents specialists in Melanoma agreed that is a good decision. I don't consider I have the means to know what is better and what is not for me. I then must be confident in what the doctors say.
It is a fact: alpha interferon works. It has been published in the latest scientific article related to this issue:
http://jnci.oxfordjournals.
org/content/102/7/493.abstract I read the entire article and is clear that the results shows that it woks not only to disease free survival (DFS) but also to overall survival (OS).
So, the question would be : Why I should not take Interferon ? Because of its side-effects than can change my way of life. But the main objective is living, and the side-effects are, from my point of view, a price we can afford . Anyway, I had already changed my way of life when I knew I had a melanoma. It's not terrible, but I have to get used to the idea that my life is risky.
Thanks everybody for the advices ! Hope everything will be ok for us.
Gabriel
P.D. Mark, once again, good luck on 11-19 !
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- November 12, 2010 at 3:31 pm
Thanks Amy, Scot, Mark, Lisa and Janner for your quick posts.
One thing is sure : I do not think I have at this moment the necessary information to take a decision. Although is the patient who has the last word, I think it is necessary to be confident in what the doctors say. I just met one who is in a multidisciplinary team at the hospital. His argument was: your SNB is clear, all scans are clear as well, but your tumor was quite thick (4,1 mm) and although it was not ulcerated, it had 2 of mitosis. So, there is a higer risk of recurrence.
I started my research with other doctors to have a second opinion. I am not frightened to take Interferon, but before I do it, I want to have more arguments. On the other hand, in four months I moving to my country, Argentina. So there are many variables I need to discuss with the doctors in case I start the treatment.
I will keep you inform !
All the best,
G.
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- November 12, 2010 at 3:31 pm
Thanks Amy, Scot, Mark, Lisa and Janner for your quick posts.
One thing is sure : I do not think I have at this moment the necessary information to take a decision. Although is the patient who has the last word, I think it is necessary to be confident in what the doctors say. I just met one who is in a multidisciplinary team at the hospital. His argument was: your SNB is clear, all scans are clear as well, but your tumor was quite thick (4,1 mm) and although it was not ulcerated, it had 2 of mitosis. So, there is a higer risk of recurrence.
I started my research with other doctors to have a second opinion. I am not frightened to take Interferon, but before I do it, I want to have more arguments. On the other hand, in four months I moving to my country, Argentina. So there are many variables I need to discuss with the doctors in case I start the treatment.
I will keep you inform !
All the best,
G.
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