Melanoma Research Foundation | sj | Activity https://forum.melanoma.org/user/sj/activity/ Activity feed for sj. Tue, 21 Apr 2026 19:33:46 -0400 https://buddypress.org/?v= en-US 30 hourly 2 ac240aff51c4e33f3c5f1a2a7a9be4be sj replied to the topic I was diagnosed with an aggressive invasive melanoma on Friday in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/i-was-diagnosed-with-an-aggressive-invasive-melanoma-on-friday/#post-280575 Sun, 05 Jan 2025 21:22:36 -0500 Just a quick update. I am at the 5 year NED stage now. I no longer require scans. I’ll see my dermatologist every 6-12 months for life.

I try not to think about it too much and trying to live my life again but it is hard.

Tragically some of those that helped me either here or via messages have since passed away. I wish I could thank them a…Read more

]]> 1c78efdf5e1f927a306466ad1f176a5d sj replied to the topic We Lost a Marvelous Friend in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/we-lost-a-marvelous-friend/#post-280574 Sun, 05 Jan 2025 21:12:05 -0500 I’m so sorry to hear this. I haven’t logged on in a while. This is devastating. RIP Bubbles. Thank you for all the help and assistance during my journey. Tragic.

]]> be29b9b087210f7a6586e48bd598f29f sj replied to the topic Still NED after 1.5 years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-after-1-5-years/#post-275285 Sun, 04 Jul 2021 12:44:40 -0400 Thanks Rhonda. This is what I am following:

 

https://www.mskcc.org/experience/patient-support/nutrition-cancer/diet-plans-cancer/cardiac-diet

]]> fee11b408b414daaf92356bf67a99c85 sj replied to the topic Julie in SoCal in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/julie-in-socal-2/#post-275283 Sat, 03 Jul 2021 21:42:33 -0400 So sad. I’ve only been here a while but Julie was lovely.

]]> ecf662aeec30069d1f1876aa1f18ea67 sj started the topic Still NED after 1.5 years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-after-1-5-years/ Sat, 03 Jul 2021 21:36:05 -0400 I was worried about this lymph node in my neck that’s been getting bigger / smaller consistently for two or three months now, but they said it doesn’t look cancerous and seems to be reactive.

What it’s reacting to I have no idea because I haven’t been sick but I did have a cut inside my mouth for a bit so maybe that was it.

So the latest scans f…Read more

]]> d63f92eead917d8629a11ffdd835c99e sj replied to the topic Hello again in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hello-again-2/#post-274825 Fri, 28 May 2021 18:57:30 -0400 Thank you Celeste! It was half the size when I woke up today. Yesterday it was well over an inch. This is a relief. I haven’t reached out to my oncologist yet. Going to see how it looks by Tuesday and if it hasn’t improved I’ll reach out.

I’m assuming any reduction in size like this is a good thing. I wouldn’t expect a cancerous lymph node to r…Read more

]]> c46aac38a72fc63baef09e8e4c8e722f sj started the topic Hello again in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hello-again-2/ Fri, 28 May 2021 00:01:35 -0400 Hey lads and ladies.

I hope you are all staying safe out there.

My next set of scans are in July. If I’m NED then it will be 1.5 years. However I just found a lump under my chin. To me it feels like a lymph node. It’s hard, and painless. None of the other nodes in the area are swollen.

My cancer was removed from the left side of my scalp. I was…Read more

]]> 6421e8f9261a53172decf45e839878e3 sj started the topic One year NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/one-year-ned/ Wed, 06 Jan 2021 01:37:16 -0500 Hi MRF Family,

I’m meeting my oncologist, Dr. Salama at Duke in NC tomorrow, but my results are in for my CT scan and they say no evidence of metastasis, so that’s officially 1 year NED since my surgery was January 2020.

It’s been a wild year, with COVID and everything else. I ended up having 5 surgeries from November 2019 to September 2020, the…Read more

]]> d172f3b3d22a9aac4a176420dd7c3d60 sj replied to the topic Melanoma Mike in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-mike-8/#post-273826 Tue, 05 Jan 2021 17:24:28 -0500 Tex this is tragic I’m so sorry. I only joined the forum a year ago and I had no interactions with Mike directly, but I read his posts and could see he was a character and a gent. He’ll be missed by everyone.

I’m genuinely upset but this so I can only imagine what it’s like for those that knew him.

This disease is awful. Rest easy Mike.

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