shari

Hello Everyone!

My name is Shari Alcorn and my husband Ted was diagnosed with Stage IV Melanoma in Oct 2009.  Had a brain tumor resected and then found lung mets.  He went on Temador which worked for about six months and then went into the Compassionate use trial of Yervoy/Ipi.  He was stable for a year and then went on it again, thanks to the pharmaceutical company paying for the drug.  he again was mostly stable but now has mets on an adrenal gland and in some lymph nodes.  The adrenal gland is the one that is growing so we were referred to Lee Moffitt for the anti pd1 trial.  He starts on Sept 20.  We're nervous but we always are.  I've read all there is and this sounds like the ssecond best option for treatment after adoptive cell therapy.  We're waiting to try that as we are both still working and don't wnat to take that much time off yet.  It was good to read the posts about the anti pd1 and we're really optimistic about Ted's outcome.

Thanks for being there and if any of you are going to be in Tampa let us know.  We will be staying with friends but would love to talk to other survivors!

Shari and Ted

Hello Everyone!

My name is Shari Alcorn and my husband Ted was diagnosed with Stage IV Melanoma in Oct 2009.  Had a brain tumor resected and then found lung mets.  He went on Temador which worked for about six months and then went into the Compassionate use trial of Yervoy/Ipi.  He was stable for a year and then went on it again, thanks to the pharmaceutical company paying for the drug.  he again was mostly stable but now has mets on an adrenal gland and in some lymph nodes.  The adrenal gland is the one that is growing so we were referred to Lee Moffitt for the anti pd1 trial.  He starts on Sept 20.  We're nervous but we always are.  I've read all there is and this sounds like the ssecond best option for treatment after adoptive cell therapy.  We're waiting to try that as we are both still working and don't wnat to take that much time off yet.  It was good to read the posts about the anti pd1 and we're really optimistic about Ted's outcome.

Thanks for being there and if any of you are going to be in Tampa let us know.  We will be staying with friends but would love to talk to other survivors!

Shari and Ted

Hello Everyone!

My name is Shari Alcorn and my husband Ted was diagnosed with Stage IV Melanoma in Oct 2009.  Had a brain tumor resected and then found lung mets.  He went on Temador which worked for about six months and then went into the Compassionate use trial of Yervoy/Ipi.  He was stable for a year and then went on it again, thanks to the pharmaceutical company paying for the drug.  he again was mostly stable but now has mets on an adrenal gland and in some lymph nodes.  The adrenal gland is the one that is growing so we were referred to Lee Moffitt for the anti pd1 trial.  He starts on Sept 20.  We're nervous but we always are.  I've read all there is and this sounds like the ssecond best option for treatment after adoptive cell therapy.  We're waiting to try that as we are both still working and don't wnat to take that much time off yet.  It was good to read the posts about the anti pd1 and we're really optimistic about Ted's outcome.

Thanks for being there and if any of you are going to be in Tampa let us know.  We will be staying with friends but would love to talk to other survivors!

Shari and Ted