shadowace

the best way to find out is to call a lawyer who knows about ssi, that is what i did, even though i filed online, got approve in 2 weeks,made sure all my drs were on board with my issues, still have to wait and support myself for 5 months, then the first check comes on the 6th month,  and i have been told ill be on meds of some kind for the rest of my life,  consultation is usually free, 

since u posted as anonymous i will reply as such

congrats on your 9 years ned, you did not post what stage you are

im stage 4 braf pos, currently ned and on meds, getting scan and MRI's twice a year

i never had that that bad, really never had the runs that bad either, i was on the heavydose of 8 injections of twice the normal dose because i was in a clinical trial, later today i go for a pet-scan to see if i am still ned, since i am on my own now,

if u are having real issues with that, talk with ur doctor, one of the side effects is coilitus, inflamation of the colon and intestines, bad stuff, not trying to scare u but it is serious stuff

good luck to your future,

i have been doing alternative things to keep my body more alkaline, which does keep me healthier?

  FOR ANYONE WHO IS NEW TO CANCER BE IT YOU ARE THE PATIENT OR THE CAREGIVER, READ HERE
 http://www.cancertutor.com/           http://www.cancertutor.com/WarBetween/War_Cure_Rates.html

also check out this mans website  http://www.chrisbeatcancer.com/
he has a lot of good information there, and some good links to buy things that would improve anyone's living conditions

http://internetsfuture.juiceplus.com/
these are supplements that i take to help keep me healthy, i recommend them for anyone, just after 3 months i have noticed much change in my health, including that i am wanting to eat more again

thanks to your post here and all of those that have followed with their story

thanks to all of you,

for me i am at 1 yr, been NED since surgery, still on chemo yervoy-ipilimumab

getting 8 doses of that, it is good to see that there are survivors that are still around 10 or more years

i have been on Zelboraf since November of 2013 & still on it, currently NED because of this and my new ways of taking care of me, if your still on this i would like to hear about, doesnt seem to be much info about long term use of this medication,,ty   MIKE

i dont know if u will get this or not, but i am fixing to have my 6th surgery soon, and what you wrote here touched me, thanks 

i am at a crossroads at this moment, because what comes next i have no idea

since diagnosis, this cancer has gotten more agressive, meaning the cancer takes less time to reappear than previously, meaning this is 6 surgeries in less than 1yr 9 months  definately dont think that this is normal by any means

i dont know if u will get this or not, but i am fixing to have my 6th surgery soon, and what you wrote here touched me, thanks 

i am at a crossroads at this moment, because what comes next i have no idea

since diagnosis, this cancer has gotten more agressive, meaning the cancer takes less time to reappear than previously, meaning this is 6 surgeries in less than 1yr 9 months  definately dont think that this is normal by any means

i dont know if u will get this or not, but i am fixing to have my 6th surgery soon, and what you wrote here touched me, thanks 

i am at a crossroads at this moment, because what comes next i have no idea

since diagnosis, this cancer has gotten more agressive, meaning the cancer takes less time to reappear than previously, meaning this is 6 surgeries in less than 1yr 9 months  definately dont think that this is normal by any means

i never had that that bad, really never had the runs that bad either, i was on the heavydose of 8 injections of twice the normal dose because i was in a clinical trial, later today i go for a pet-scan to see if i am still ned, since i am on my own now,

if u are having real issues with that, talk with ur doctor, one of the side effects is coilitus, inflamation of the colon and intestines, bad stuff, not trying to scare u but it is serious stuff

good luck to your future,

i have been doing alternative things to keep my body more alkaline, which does keep me healthier?

  FOR ANYONE WHO IS NEW TO CANCER BE IT YOU ARE THE PATIENT OR THE CAREGIVER, READ HERE
 http://www.cancertutor.com/           http://www.cancertutor.com/WarBetween/War_Cure_Rates.html

also check out this mans website  http://www.chrisbeatcancer.com/
he has a lot of good information there, and some good links to buy things that would improve anyone's living conditions

http://internetsfuture.juiceplus.com/
these are supplements that i take to help keep me healthy, i recommend them for anyone, just after 3 months i have noticed much change in my health, including that i am wanting to eat more again

i never had that that bad, really never had the runs that bad either, i was on the heavydose of 8 injections of twice the normal dose because i was in a clinical trial, later today i go for a pet-scan to see if i am still ned, since i am on my own now,

if u are having real issues with that, talk with ur doctor, one of the side effects is coilitus, inflamation of the colon and intestines, bad stuff, not trying to scare u but it is serious stuff

good luck to your future,

i have been doing alternative things to keep my body more alkaline, which does keep me healthier?

  FOR ANYONE WHO IS NEW TO CANCER BE IT YOU ARE THE PATIENT OR THE CAREGIVER, READ HERE
 http://www.cancertutor.com/           http://www.cancertutor.com/WarBetween/War_Cure_Rates.html

also check out this mans website  http://www.chrisbeatcancer.com/
he has a lot of good information there, and some good links to buy things that would improve anyone's living conditions

http://internetsfuture.juiceplus.com/
these are supplements that i take to help keep me healthy, i recommend them for anyone, just after 3 months i have noticed much change in my health, including that i am wanting to eat more again

hey Bryan

welcome to the club no one wanted to join, lol

they dropped me from chemo alltogether, and i am now restaged at 3C metastatic melanoma with the news from my recent surgery that was 4-16-13

good luck on your journey that u are on

there is good advice at chrisbeatcancer.com

if u read my proile on here u will learn more, i  turn 55 this year, and am in my 2nd year since diagnosed with cancer

ill watch here to see if  u post more questions

Sincerely

Mike

hey Bryan

welcome to the club no one wanted to join, lol

they dropped me from chemo alltogether, and i am now restaged at 3C metastatic melanoma with the news from my recent surgery that was 4-16-13

good luck on your journey that u are on

there is good advice at chrisbeatcancer.com

if u read my proile on here u will learn more, i  turn 55 this year, and am in my 2nd year since diagnosed with cancer

ill watch here to see if  u post more questions

Sincerely

Mike

hey Bryan

welcome to the club no one wanted to join, lol

they dropped me from chemo alltogether, and i am now restaged at 3C metastatic melanoma with the news from my recent surgery that was 4-16-13

good luck on your journey that u are on

there is good advice at chrisbeatcancer.com

if u read my proile on here u will learn more, i  turn 55 this year, and am in my 2nd year since diagnosed with cancer

ill watch here to see if  u post more questions

Sincerely

Mike

Hi Bryan

are u a patient or caregiver?

yes , traditionally 4 is the max.

i was on a clinical trial , i drew the heavy dose i got 5mg/ml of yervoy each dose, the first 4 every 3 weeks

the second 4 every 90 days, i did sixof eight altogether, and then got a little sick for the first time, and was making a decision to drop out, along with knowing that 4 ppl died on this heavy dose, and that my recent ct scan was bad, the surgery that followed confrimed more cancer, and they offered radiation that i refused,  and now am on my own, eating well and taking supplements to help my immune system, and get a petscan every 3 months for now to see if i am doing well or not

i hope this helps,  with your question, Mike

Hi Bryan

are u a patient or caregiver?

yes , traditionally 4 is the max.

i was on a clinical trial , i drew the heavy dose i got 5mg/ml of yervoy each dose, the first 4 every 3 weeks

the second 4 every 90 days, i did sixof eight altogether, and then got a little sick for the first time, and was making a decision to drop out, along with knowing that 4 ppl died on this heavy dose, and that my recent ct scan was bad, the surgery that followed confrimed more cancer, and they offered radiation that i refused,  and now am on my own, eating well and taking supplements to help my immune system, and get a petscan every 3 months for now to see if i am doing well or not

i hope this helps,  with your question, Mike

Hi Bryan

are u a patient or caregiver?

yes , traditionally 4 is the max.

i was on a clinical trial , i drew the heavy dose i got 5mg/ml of yervoy each dose, the first 4 every 3 weeks

the second 4 every 90 days, i did sixof eight altogether, and then got a little sick for the first time, and was making a decision to drop out, along with knowing that 4 ppl died on this heavy dose, and that my recent ct scan was bad, the surgery that followed confrimed more cancer, and they offered radiation that i refused,  and now am on my own, eating well and taking supplements to help my immune system, and get a petscan every 3 months for now to see if i am doing well or not

i hope this helps,  with your question, Mike