The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

sgrain

Forum Replies Created

Viewing 2 reply threads
  • Replies
      sgrain
      Participant

      Diagnosed Stage 3 in 1998.  Aside from a local recurrence in 2000, I was NED until 2011 when it was found in my lungs.  After trying several recently FDA approved drugs, my PET scan last showed that I am NED again.  These new drugs give hope to us all!  Hang in there all!

      sgrain
      Participant

      Diagnosed Stage 3 in 1998.  Aside from a local recurrence in 2000, I was NED until 2011 when it was found in my lungs.  After trying several recently FDA approved drugs, my PET scan last showed that I am NED again.  These new drugs give hope to us all!  Hang in there all!

      sgrain
      Participant

      Diagnosed Stage 3 in 1998.  Aside from a local recurrence in 2000, I was NED until 2011 when it was found in my lungs.  After trying several recently FDA approved drugs, my PET scan last showed that I am NED again.  These new drugs give hope to us all!  Hang in there all!

      sgrain
      Participant

      I so agree.  After the bacterial infections, I was so bummed to hear that I couldn't go back on the keytruda (before the last scan which showed NED) and my doctor said my next option would be chemo again which might help.  This would have been my 3rd time doing chemo and losing my hair and feeling like crap so I'm doubly thankful..  This will be the best Thanksgiving ever.

      sgrain
      Participant

      I so agree.  After the bacterial infections, I was so bummed to hear that I couldn't go back on the keytruda (before the last scan which showed NED) and my doctor said my next option would be chemo again which might help.  This would have been my 3rd time doing chemo and losing my hair and feeling like crap so I'm doubly thankful..  This will be the best Thanksgiving ever.

      sgrain
      Participant

      I so agree.  After the bacterial infections, I was so bummed to hear that I couldn't go back on the keytruda (before the last scan which showed NED) and my doctor said my next option would be chemo again which might help.  This would have been my 3rd time doing chemo and losing my hair and feeling like crap so I'm doubly thankful..  This will be the best Thanksgiving ever.

      sgrain
      Participant

      I know how little hope I had when I was diagnosed at stage 3 and how much more devastating it was at stage 4 but with all the new drugs out there, I truly do believe there will one day be a true cure.  I wish there were more positive stories out there like mine.  Don't get me wrong, I know I'm not out of the woods but buying time is a great thing!

      sgrain
      Participant

      I know how little hope I had when I was diagnosed at stage 3 and how much more devastating it was at stage 4 but with all the new drugs out there, I truly do believe there will one day be a true cure.  I wish there were more positive stories out there like mine.  Don't get me wrong, I know I'm not out of the woods but buying time is a great thing!

      sgrain
      Participant

      I know how little hope I had when I was diagnosed at stage 3 and how much more devastating it was at stage 4 but with all the new drugs out there, I truly do believe there will one day be a true cure.  I wish there were more positive stories out there like mine.  Don't get me wrong, I know I'm not out of the woods but buying time is a great thing!

      sgrain
      Participant

      I was very impressed with her and she renewed my faith in Mayo being a reputable melanoma clinic.  Cheers to Keytruda!

      sgrain
      Participant

      I was very impressed with her and she renewed my faith in Mayo being a reputable melanoma clinic.  Cheers to Keytruda!

      sgrain
      Participant

      I was very impressed with her and she renewed my faith in Mayo being a reputable melanoma clinic.  Cheers to Keytruda!

      sgrain
      Participant

      My scan was 2 weeks after my third infusion which seems way too early to quit but we'll see what Mayo has to say.  I'm also going to call Chicago University to see what trials they may have going that I may be eligible for.

      sgrain
      Participant

      My scan was 2 weeks after my third infusion which seems way too early to quit but we'll see what Mayo has to say.  I'm also going to call Chicago University to see what trials they may have going that I may be eligible for.

      sgrain
      Participant

      My scan was 2 weeks after my third infusion which seems way too early to quit but we'll see what Mayo has to say.  I'm also going to call Chicago University to see what trials they may have going that I may be eligible for.

Viewing 2 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.