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      Participant

      My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

      Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

      We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

      I wish you the best in your decision making.

       

       

      secondhalf
      Participant

      My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

      Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

      We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

      I wish you the best in your decision making.

       

       

      secondhalf
      Participant

      My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

      Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

      We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

      I wish you the best in your decision making.

       

       

      secondhalf
      Participant

      At the beginning of my melanoma journey my melanoma mutation understanding was BRAF + or BRAF -.  Other mutations were not part of my understanding until I had a recurrence  and used what I had learned from this board to insist on additional testing. 

      Thanks for the additional insight from your doctor.  

      secondhalf
      Participant

      At the beginning of my melanoma journey my melanoma mutation understanding was BRAF + or BRAF -.  Other mutations were not part of my understanding until I had a recurrence  and used what I had learned from this board to insist on additional testing. 

      Thanks for the additional insight from your doctor.  

      secondhalf
      Participant

      At the beginning of my melanoma journey my melanoma mutation understanding was BRAF + or BRAF -.  Other mutations were not part of my understanding until I had a recurrence  and used what I had learned from this board to insist on additional testing. 

      Thanks for the additional insight from your doctor.  

      secondhalf
      Participant

      Thanks for the lead.  I am interested in having a conversation with my doctor  at my next visit.  Now that I know that wild types have variable, I can ask better questions.

      secondhalf
      Participant

      Thanks for the lead.  I am interested in having a conversation with my doctor  at my next visit.  Now that I know that wild types have variable, I can ask better questions.

      secondhalf
      Participant

      Thanks for the lead.  I am interested in having a conversation with my doctor  at my next visit.  Now that I know that wild types have variable, I can ask better questions.

      secondhalf
      Participant

      Thanks for the lead.  I will check out this trial.

      secondhalf
      Participant

      Thanks for the lead.  I will check out this trial.

      secondhalf
      Participant

      Thanks for the lead.  I will check out this trial.

      secondhalf
      Participant

      It does help to hear that others are feeling great while living with advanced melanoma .

      Did you start MK-3475 after becoming Stage 4?  

      secondhalf
      Participant

      It does help to hear that others are feeling great while living with advanced melanoma .

      Did you start MK-3475 after becoming Stage 4?  

      secondhalf
      Participant

      It does help to hear that others are feeling great while living with advanced melanoma .

      Did you start MK-3475 after becoming Stage 4?  

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