Scout22

Thanks for all the responses and well wishes. I had a groin lymph node dissection today. Currently recovering in bed. Hoping for the best from pathology.

Thanks Celeste. I am still hopeful for a good response. I feel like at our initial consultation, my oncologist made it seem like Neoadjuvant immunotherapy was a slam dunk, even advising I might respond so well that surgery wouldn’t even be needed. I always kind of thought that was a bit aggressive considering what I’ve seen and read about average response time. I feel now like what he said about complete response in 6 weeks is more the exception than the rule. I received dose 3 of Ipi/Nivo yesterday, now I am pending contact from surgeons to have a consult and discuss lymph node removal.

Celeste thanks for your response. You have had quite the journey it seems. Glad you are doing so well!

Thanks Ed, helpful information. Joyk, glad to hear your husband is doing well, and I hope he continues down that path!!!!

Thanks Mark and Ed. It is interesting for sure. I’ve just seen a lot of information online regarding immunotherapy sometimes taking months to work…seems interesting they only give it 6 weeks in the neoadjuvant setting. I’m trusting the numbers and trusting the doctors!

Thanks for all the responses and all the information! The doctor called this morning with PET/CT results and it appears that the spread is limited to the regional lymph nodes (2) at this time. I guess that is the best news I could have received today so I am thankful for that. I go in Friday to discuss the next steps which will likely be some form of immunotherapy to attempt at shrinking the nodes and seeing how my body responds. I think there will possibly be more surgery after that. For today I will try and celebrate this small victory!

Thank you Celeste! I am going to be asking a lot more questions on here I am sure, and I truly appreciate the thoughtful and informative response that you provided.