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scottr

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      scottr
      Participant

      Hi Terri,

      Thanks for your reply. I originally filled out the form but I guess I did not make the information available.

      My profile is now visible.

      Best to you.

       

      scottr
      Participant

      Hi Terri,

      Thanks for your reply. I originally filled out the form but I guess I did not make the information available.

      My profile is now visible.

      Best to you.

       

      scottr
      Participant

      Hi Terri,

      Thanks for your reply. I originally filled out the form but I guess I did not make the information available.

      My profile is now visible.

      Best to you.

       

      scottr
      Participant

      "How does it feel when everyone says your amazing" Seal

      You are all amazing!

      I wanted to thank everyone who responded. I find your words very reassuring and helpful. I guess sometimes the emotional toll a cancer diagnosis causes can be underestimated.

      In my case even with the good prognotic outlook, It is still cancer. I think coming home after the WLE which for me was about 5 inches long had an impact. Doctors cuting away my skin and performing a second biopsy just made it all the more real. This is a serious problem and can not be taken lightly.

      I have been feeling almost guilty for even posting here where I have read some posts and profiles of some incredible people with situations that go so far beyond where I am at. Thinking i should just "suck it up" and move past this in heroic fashion.

      The feedback I have recieved from friends etc is a long way from comforting. Responses such as "so they just cut it out and your good to go"  "Thank god it isnt something more serious". It doesn't upset me that they think this way too much because I know they do not understand and I don't feel the need to educate them all. But it does leave me somewhat isolated with my real thoughts about this disease.

      I have found that here is where I can express my fears and be understood. Although we are strangers there is a sense of unity in the common diagnosis.

      I am 47 years old. I have had my lung collapse where I was in the hospital for almost a month. I have had a TIA (minor stroke) and neither of these things bothered me at all. For some reason this did. Like I was staring down the barrel of a gun.

      Thank you all for taking your valueable time to share your thoughts with me. it is refreshing to see the human spirit alive and well and reaching out to others with nothing in it for yourselves other than to be helpful

      You truly are amazing.

       

       

       

      scottr
      Participant

      "How does it feel when everyone says your amazing" Seal

      You are all amazing!

      I wanted to thank everyone who responded. I find your words very reassuring and helpful. I guess sometimes the emotional toll a cancer diagnosis causes can be underestimated.

      In my case even with the good prognotic outlook, It is still cancer. I think coming home after the WLE which for me was about 5 inches long had an impact. Doctors cuting away my skin and performing a second biopsy just made it all the more real. This is a serious problem and can not be taken lightly.

      I have been feeling almost guilty for even posting here where I have read some posts and profiles of some incredible people with situations that go so far beyond where I am at. Thinking i should just "suck it up" and move past this in heroic fashion.

      The feedback I have recieved from friends etc is a long way from comforting. Responses such as "so they just cut it out and your good to go"  "Thank god it isnt something more serious". It doesn't upset me that they think this way too much because I know they do not understand and I don't feel the need to educate them all. But it does leave me somewhat isolated with my real thoughts about this disease.

      I have found that here is where I can express my fears and be understood. Although we are strangers there is a sense of unity in the common diagnosis.

      I am 47 years old. I have had my lung collapse where I was in the hospital for almost a month. I have had a TIA (minor stroke) and neither of these things bothered me at all. For some reason this did. Like I was staring down the barrel of a gun.

      Thank you all for taking your valueable time to share your thoughts with me. it is refreshing to see the human spirit alive and well and reaching out to others with nothing in it for yourselves other than to be helpful

      You truly are amazing.

       

       

       

      scottr
      Participant

      "How does it feel when everyone says your amazing" Seal

      You are all amazing!

      I wanted to thank everyone who responded. I find your words very reassuring and helpful. I guess sometimes the emotional toll a cancer diagnosis causes can be underestimated.

      In my case even with the good prognotic outlook, It is still cancer. I think coming home after the WLE which for me was about 5 inches long had an impact. Doctors cuting away my skin and performing a second biopsy just made it all the more real. This is a serious problem and can not be taken lightly.

      I have been feeling almost guilty for even posting here where I have read some posts and profiles of some incredible people with situations that go so far beyond where I am at. Thinking i should just "suck it up" and move past this in heroic fashion.

      The feedback I have recieved from friends etc is a long way from comforting. Responses such as "so they just cut it out and your good to go"  "Thank god it isnt something more serious". It doesn't upset me that they think this way too much because I know they do not understand and I don't feel the need to educate them all. But it does leave me somewhat isolated with my real thoughts about this disease.

      I have found that here is where I can express my fears and be understood. Although we are strangers there is a sense of unity in the common diagnosis.

      I am 47 years old. I have had my lung collapse where I was in the hospital for almost a month. I have had a TIA (minor stroke) and neither of these things bothered me at all. For some reason this did. Like I was staring down the barrel of a gun.

      Thank you all for taking your valueable time to share your thoughts with me. it is refreshing to see the human spirit alive and well and reaching out to others with nothing in it for yourselves other than to be helpful

      You truly are amazing.

       

       

       

      scottr
      Participant

      Again Thank you so much for taking the time to respond to my inquiry. 

      The folks here seem very supportive and i sincerely hope that you all remain or get NED in short order.

      I will check in here from time to time and expect to live a long time. Hopefully in the future I can share some encouraging words with someone else who is recently diagnosed.

      Best wishes 

      scottr
      Participant

      Again Thank you so much for taking the time to respond to my inquiry. 

      The folks here seem very supportive and i sincerely hope that you all remain or get NED in short order.

      I will check in here from time to time and expect to live a long time. Hopefully in the future I can share some encouraging words with someone else who is recently diagnosed.

      Best wishes 

      scottr
      Participant

      Again Thank you so much for taking the time to respond to my inquiry. 

      The folks here seem very supportive and i sincerely hope that you all remain or get NED in short order.

      I will check in here from time to time and expect to live a long time. Hopefully in the future I can share some encouraging words with someone else who is recently diagnosed.

      Best wishes 

      scottr
      Participant

      thank you for your insight and so sorry to hear that you lost your husband to this disease. it seems that this type if cancer is more prominent than ever. 20 years ago i lost my grandfather to melanoma and 2 years ago my cousin. I think this is why it scares me as much as it does right now·

      Does anyone have insight into the extensive regression on the Path report· over 75% or on the finding of the small lump in my neck? truthfully i think I know the answers but looking for verification of my thoughts.

      as i said i hate being paranoid.

      thanks again for your responses. i feel a little more normal knowing my thoughts are not just me making something out of nothing. :

       

      scottr
      Participant

      thank you for your insight and so sorry to hear that you lost your husband to this disease. it seems that this type if cancer is more prominent than ever. 20 years ago i lost my grandfather to melanoma and 2 years ago my cousin. I think this is why it scares me as much as it does right now·

      Does anyone have insight into the extensive regression on the Path report· over 75% or on the finding of the small lump in my neck? truthfully i think I know the answers but looking for verification of my thoughts.

      as i said i hate being paranoid.

      thanks again for your responses. i feel a little more normal knowing my thoughts are not just me making something out of nothing. :

       

      scottr
      Participant

      thank you for your insight and so sorry to hear that you lost your husband to this disease. it seems that this type if cancer is more prominent than ever. 20 years ago i lost my grandfather to melanoma and 2 years ago my cousin. I think this is why it scares me as much as it does right now·

      Does anyone have insight into the extensive regression on the Path report· over 75% or on the finding of the small lump in my neck? truthfully i think I know the answers but looking for verification of my thoughts.

      as i said i hate being paranoid.

      thanks again for your responses. i feel a little more normal knowing my thoughts are not just me making something out of nothing. :

       

      scottr
      Participant

      Hi Tom,

      Thanks for your reply. Wow, your team really went after the melanoma in your case. Happy to hear your liver biopsy came back as benign and I hope you are responding well to your treatments.

      I am assuming the oncologist in my case is assuming that the primary doctor performed a routine skin exam and checked nodes. They however did not. I think this is pretty standard practice when a melanoma diagnosis is presented.

      I was horrified when primary doctor indicated that the melanoma according to the report said it was superficial so it was not too serious. The path report only mentioned superficial as diagnosis of melanoma type. It was clear to me that doctor did not understand pathology report. This she pretty much admitted when I asked her a few questions.

      I am looking forward to seeing the oncologist Nov 12. This meeting is simply a pre-op meeting. Doctor said that oncologist wants to do WLE and SNLB.

      Still, confused about the lack of presentational evaluation. 

      Should I go to have the small lump in neck checked prior to meeting with Oncologist?

      scottr
      Participant

      Hi Tom,

      Thanks for your reply. Wow, your team really went after the melanoma in your case. Happy to hear your liver biopsy came back as benign and I hope you are responding well to your treatments.

      I am assuming the oncologist in my case is assuming that the primary doctor performed a routine skin exam and checked nodes. They however did not. I think this is pretty standard practice when a melanoma diagnosis is presented.

      I was horrified when primary doctor indicated that the melanoma according to the report said it was superficial so it was not too serious. The path report only mentioned superficial as diagnosis of melanoma type. It was clear to me that doctor did not understand pathology report. This she pretty much admitted when I asked her a few questions.

      I am looking forward to seeing the oncologist Nov 12. This meeting is simply a pre-op meeting. Doctor said that oncologist wants to do WLE and SNLB.

      Still, confused about the lack of presentational evaluation. 

      Should I go to have the small lump in neck checked prior to meeting with Oncologist?

      scottr
      Participant

      Hi Tom,

      Thanks for your reply. Wow, your team really went after the melanoma in your case. Happy to hear your liver biopsy came back as benign and I hope you are responding well to your treatments.

      I am assuming the oncologist in my case is assuming that the primary doctor performed a routine skin exam and checked nodes. They however did not. I think this is pretty standard practice when a melanoma diagnosis is presented.

      I was horrified when primary doctor indicated that the melanoma according to the report said it was superficial so it was not too serious. The path report only mentioned superficial as diagnosis of melanoma type. It was clear to me that doctor did not understand pathology report. This she pretty much admitted when I asked her a few questions.

      I am looking forward to seeing the oncologist Nov 12. This meeting is simply a pre-op meeting. Doctor said that oncologist wants to do WLE and SNLB.

      Still, confused about the lack of presentational evaluation. 

      Should I go to have the small lump in neck checked prior to meeting with Oncologist?

Viewing 2 reply threads
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