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SBeattie

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9.2011 – feel raised ‘thing’ on scalp; biopsy mel; SNB neg; WLE clean margins; brain MRI neg; PET/CT neg – 2A
2.2012 – feel bump near initial scar; SNB (drained other side) neg; brain MRI neg; PET/CT neg; another WLE; 6 wks radiation
8.2013 – scan show 2.2 cm right upper lung; brain MRI neg. LDH only slightly elevated; removed via VATS; LDH right back to WNL; declined ipi/interferon trial; elect to ‘watch and wait’
10.2013 all scans, brain MRI neg; LDH normal
12.2013 – paratrach node lights up on scan; brain MRI neg; surgeon leery of removing due to likelihood of mel waiting to again rear it’s ugly head!find this out on Fri. 12.20 – can enroll in BMS ipi/nivo trial which closes recruitment Mon. 12.23…consent etc. faxed to local onc. sign papers…screening Jan 6….can’t recall trail #; 2/3 chance of getting into a nivo/ipi arm…if ipi only arm and progress, can cross over and get nivo – NERVOUS about scans, LDH etc.
I am a ‘young’ 60 y/o who e.g. hasn’t missed work due to illness in decades (unlike most of my friends!; genetic longevity runs in family; cardio exercise 40 – 60 minutes every day; strength stuff 2x/wk.
but alas, fair skinned; green-eyed, dirty blond/reddish hair with bad sunburns as child and young adult…

Display Name

SBeattie

I am

the patient

Initial Diagnosis Month

September

Initial Diagnosis Year

2011

Stage at Diagnosis

Stage 2

Current Stage

Stage 4