Melanoma Research Foundation | RhondaF | Activity https://forum.melanoma.org/user/rhondaf/activity/ Activity feed for RhondaF. Tue, 21 Apr 2026 23:43:43 -0400 https://buddypress.org/?v= en-US 30 hourly 2 01952bac5c594ecff5cc132e5e957064 RhondaF's profile was updated https://forum.melanoma.org/activity/p/124015/ Sun, 14 Jul 2024 19:41:12 -0400 0 d787d6fa26198a6ed5d12e02601f038b RhondaF replied to the topic Melanoma in Lymph Node... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-in-lymph-node/#post-278836 Fri, 30 Jun 2023 18:45:39 -0400 Praying all will go well with your diagnosis and treatment. Keep us updated here on the forum.

Rhonda

]]> 40899e9a457c634e784af69a63adcf30 RhondaF replied to the topic Melanoma in Lymph Node... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-in-lymph-node/#post-278829 Thu, 29 Jun 2023 19:59:53 -0400 Hello TheGaz1982,

Thank you for your response. My husband is doing so-so. He’s dealing with side effects from immunotherapy still even after 2 years. Muscle weakness, fatigue, hypothyroidism, and now swallowing prob attributed to radiation on his neck area. He is doing much better, but each day is something new it seems.

How are you d…Read more

]]> edcf0a83d008e21fd02e4d4fcbb0a501 RhondaF replied to the topic Melanoma in Lymph Node... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-in-lymph-node/#post-278779 Wed, 21 Jun 2023 18:13:41 -0400 Hello TheGaz1982,

My husband had melanoma that spread to his lymph nodes from his ear to neck. He felt a nodule in his neck in Jan, 2020 and it started to get bigger. By the time we got in to see a dr (about May, 2020) it was fairly large. All in all, after surgery, there was only 1 lymph node that had cancer in it. They removed several…Read more

]]> f6ac25751c2f8cf1a668b20139007b95 RhondaF replied to the topic 7 years since diagnosis and doing great! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/7-years-since-diagnosis-and-doing-great/#post-278629 Fri, 12 May 2023 11:39:52 -0400 April, Great to hear you are doing well! It gives hope to those of us still dealing with it. Do you still get scans from time to time? Just wondering how often. My husband’s oncologist is still doing PET scans every 6 months for now – he says that the suggestion is to do this for 5 years, but there’s other findings that says they can go longer…Read more

]]> 134d3d7d3322ca7829fc68d10ec9de93 RhondaF's profile was updated https://forum.melanoma.org/activity/p/58587/ Fri, 12 May 2023 11:26:43 -0400 0 9863ad7f35bdfc00e5f6acb19e4fbf06 RhondaF replied to the topic I rang the bell today, folks! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/i-rang-the-bell-today-folks/#post-276236 Tue, 18 Jan 2022 22:36:12 -0500 So happy for the good news!!

]]> 02c1ea8947cd909ea323f389d2aa994f RhondaF replied to the topic Happy New Year - an update and some intel in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/happy-new-year-an-update-and-some-intel/#post-276190 Thu, 06 Jan 2022 00:15:56 -0500 Many thanks to all who contribute here! There is HOPE always. Glad for good reports. I keep up as I keep up with my husband’s progress. It helps to hear from others. May God bless..

]]> 9b6da0f6d1a8126362e7619d87c1889e RhondaF replied to the topic Could it be nodular melanoma? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/could-it-be-nodular-melanoma/#post-276064 Tue, 07 Dec 2021 07:51:58 -0500 Rosie,  So happy for your report! Have a blessed Christmas!

Rhonda

]]> 09785d84983c0056e2230cf771ce5452 RhondaF replied to the topic Any suggestions for weight loss and fatigue in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/any-suggestions-for-weight-loss-and-fatigue/#post-275583 Wed, 01 Sep 2021 07:29:47 -0400 The doctor should be able to give you something for the nausea.  My husband was dealing with nausea and couldn’t eat. His tsh was off. They changed it. I bought him protein drinks which helped and nutrient dense foods. I also made fruit smoothies with whole milk, yogurt, whey protein, & frozen fruit.

Hope this helps.

R

]]> 3553ad47d2fd953a50866079f6c79e27 RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275407 Wed, 28 Jul 2021 00:02:55 -0400 Here’s a short update on Lee:
His drain is out now. He’s up going to the bathroom, but still attached to stuff. He’s progressing in the right direction. They don’t have labs back on the fluid. The other blood work is improving in regards to liver enzymes, etc. Working on moving him to another floor. The nurse said he would not be surprised if he…Read more

]]> 8a606eeab1bbd1adb0b27f33949999db RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275402 Mon, 26 Jul 2021 20:17:06 -0400 Anyway, I’ll make a really short post to update on my husband.

He’s back in the hospital. Fluid buildup again around his heart. He had an Echo on July 8 that showed no fluid.

He was coughing and had a fever and pain in his right chest. Couldn’t keep any liquids or food down. Took him to ER Saturday evening, they tried to drain the fluid with a…Read more

]]> 16bea642adb83f0abfd4b387d88330d7 RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275401 Mon, 26 Jul 2021 20:05:34 -0400 I know they are working on this issue. I wish they could find my post!

]]> 293baa81686cae4cc34ad766453465cf RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275397 Mon, 26 Jul 2021 06:17:24 -0400 I’m not sure what is going on with this forum, but I just lost my 2nd post on this thread and it was long. I should have saved it, but I didn’t.  I am writing this to see if it will actually post.

Rhonda

]]> 90e9e61d92145e4055cf7c9e5c8a0e96 RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275322 Sat, 10 Jul 2021 00:20:08 -0400 Hi Celeste, Your links are a wealth of information – didn’t read everything, but gained more understanding.

My husband is gradually gaining strength and been working out in the mornings and wet go walking after dinner. He is eating very well. My only concern is that he is still losing weight. He’s lost 15 lbs since he came home from the hospital.…Read more

]]> b25bb5e6d57a52877c4f81f301d3b159 RhondaF replied to the topic Still NED after 1.5 years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-after-1-5-years/#post-275284 Sat, 03 Jul 2021 22:44:51 -0400 SJ,

Sounds great that your scans are clear! You are doing well on the cardiac diet. Do you have a link to the cardiac plan you are following?

Rhonda

]]> ca0828e1a5147b0f4c295d7e04229d6a RhondaF replied to the topic Four down, one to go in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/four-down-one-to-go/#post-275106 Thu, 24 Jun 2021 18:31:20 -0400 Aloha,  It was brought to my attention that you live in Hawaii. My husband & I live on Maui. I’m glad to know you are doing well. Wanted to see if you found a Melanoma specialist in Hawaii. Our Dr isn’t.  I just joined this forum this week as my husband had a severe reaction to the Immunotherapy after 9 months of treatments. They were treat…Read more

]]> 6f3f7c5b3225f68330276814ac949be7 RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275078 Wed, 23 Jun 2021 03:46:07 -0400 Thank you so much Celeste! I’ll check out the links and try to see if there is another oncologist on Maui. We are not like on the mainland with numerous specialty doctors. We are lucky if we have 1.

Rhonda

]]> a61b85b61bff1e4b39473b4f44643b31 RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275077 Wed, 23 Jun 2021 03:43:12 -0400 Caman,

No, we neither one got the covid shot. We didn’t believe it to be in our best interest.

I’m so sorry for the bad reactions you’ve had especially after being free from issues taking the treatments.

Praying you’ll get thru this and return to better health.

My husband’s Dr wanted him to get the shot, but he said no. They had a strong…Read more

]]> fc97692d43cee943953fdbaa3f72b345 RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275059 Mon, 21 Jun 2021 07:49:12 -0400 Thank you Mark! I found his profile and commented on a thread he had. It’s good to see how well he’s doing even though still dealing with the effects.

]]> 2da1a7834e2b9094c865aca4a4f1938f RhondaF replied to the topic Four down, one to go in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/four-down-one-to-go/#post-275058 Mon, 21 Jun 2021 01:59:43 -0400 Aloha,  It was brought to my attention that you live in Hawaii. My husband & I live on Maui. I’m glad to know you are doing well. Wanted to see if you found a Melanoma specialist in Hawaii. Our Dr isn’t.  I just joined this forum this week as my husband had a severe reaction to the Immunotherapy after 9 months of treatments. They were treating h…Read more

]]> a8594c7e7404f42c1d1db33c91285d39 RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275055 Sun, 20 Jun 2021 18:52:18 -0400

The oncologist will stop treatments. We don’t have a melanoma specialist here in Hawaii that I know of. I checked the site for the closest and it looks the mainland would be our closest option.

It has been so scary and not over yet. Whether it’s from the shock my husband was experiencing with low blood pressure and inflammation, he has been…

Read more

]]> 9dac26188f86b57affc7fa6bd9146ba4 RhondaF replied to the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/#post-275052 Sun, 20 Jun 2021 04:56:32 -0400 Dear Mark,

Thank you for your kind words.  My husband tried to tell them he was on immunotherapy, but I couldn’t get back there where he was. Now I know that I should have insisted.  I did tell a doctor that came out to talk to me while I waited at the ER that I thought it was the immunotherapy and he seemed to understand.  But the symptoms we…Read more

]]> 00ae14df6e37a1100f3a8bc54c022011 RhondaF started the topic Opdivo causing inflammation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/opdivo-causing-inflammation/ Sat, 19 Jun 2021 07:13:12 -0400 My husband has been taking Opdivo since Sept, 2020 and done pretty well until the past month.  He started going downhill with fatigue, eating, muscles hurting. Then the past 2 weeks he got particularly worse with eating and vomiting a couple of times, then on Monday, June 14, he felt chest pain when he would breathe. He had an Opdivo scheduled,…Read more

]]> bea7389b1ada75875c0729b1356045f6 RhondaF posted an update: My husband had melanoma removed from the back of his ear in […] https://forum.melanoma.org/activity/p/4860/ Fri, 18 Jun 2021 07:00:26 -0400 My husband had melanoma removed from the back of his ear in May, 2019. Lymph nodes checked were clear. No treatment recommended. In 2020, my husband noticed a hard nodule in his neck on the same side as the melanoma was removed. Of course, with covid we couldn’t get into doctors for a while. He had surgery in May, 2020 to remove the lymph nodes…Read more

]]> 0 f9e4c9094a86c6184b0cf7975ddc7797 RhondaF's profile was updated https://forum.melanoma.org/activity/p/4859/ Fri, 18 Jun 2021 06:57:13 -0400 0