MRF-Logo2019-Horizontal-RGB
Rexpo
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Rexpo

Forum Replies Created

Viewing 2 reply threads
  • Replies
      • April 15, 2019 at 8:21 pm
      Rexpo
      Participant

        i had one treatment of IPI/NIVO, then developed serious colitis that was never cured.  Had steroids, remicade, and entyvio.  None worked, ended up with a colectomy which saved my life.

        My point is that I only had one treament and in less than a year I am NED.  If you are getting colitis, chances are your immune system is attacking your tumor(s).

        Do not fret that you will not be continuing Immuno.

         

        Good luck!

        • April 15, 2019 at 8:07 pm
        Rexpo
        Participant

          i went through this, had diarrhea about 15 times a day beginning ten days after first treatment of IPI/NIVO.  Spent a month at home on massive steroids, then 3 weeks in the hospital attempting to rest my colon.  Ended up with a colectomy. 

          What you are going through is really serious stuff, make sure you speak with your oncologist and encourage him/her to have you see a GI specialist and get a flex sigmoidoscopy.

          Surgery saved my life, hopefully it won't come to that with you!

          • July 6, 2018 at 1:18 pm
          Rexpo
          Participant

            I deveolped colitis 10 days after my first treatment of yervoy/opdivo

            I tried remicade, it did not work.  On steroids for 2 months.  It did not work

              I spent 3 weeks in the hospital, then had a colectomy, removed almost my entire colon.  Other than having an ileostimy, my life has returned to normal after about 6 weeks post surgery.  I lost 38 lbs in the process and put all of that weight back on.

        Viewing 2 reply threads