Pauline
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Pauline

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • November 17, 2012 at 7:36 pm
      Pauline
      Participant
      Thanks so much for your reply! I read your blog post and it sounds like radiation, anti-pd1 could be the next steps. How hard is it to get into those trials? She does not have BRAF mutation.

      Are anti-IL-10 and GAL-3 FDA approved? What kind of treatments are they?

      Is something like RF Ablation ever done at this point when surgery is not an option?

      Thanks so much!!

      • November 17, 2012 at 7:36 pm
      Pauline
      Participant
      Thanks so much for your reply! I read your blog post and it sounds like radiation, anti-pd1 could be the next steps. How hard is it to get into those trials? She does not have BRAF mutation.

      Are anti-IL-10 and GAL-3 FDA approved? What kind of treatments are they?

      Is something like RF Ablation ever done at this point when surgery is not an option?

      Thanks so much!!

      • November 17, 2012 at 7:36 pm
      Pauline
      Participant
      Thanks so much for your reply! I read your blog post and it sounds like radiation, anti-pd1 could be the next steps. How hard is it to get into those trials? She does not have BRAF mutation.

      Are anti-IL-10 and GAL-3 FDA approved? What kind of treatments are they?

      Is something like RF Ablation ever done at this point when surgery is not an option?

      Thanks so much!!

      • November 17, 2012 at 7:18 pm
      Pauline
      Participant
      Thanks for your reply! It was tested for BRAF mutation and she does not have it. So, I forget the name of the drug, but its not an option. I’m just getting involved in this and I wish I knew earlier that yervoy only works for 15%! We are meeting with oncologist next week to hear suggestions on what next. I want to be educated and prepared for that meeting.
      • November 17, 2012 at 7:18 pm
      Pauline
      Participant
      Thanks for your reply! It was tested for BRAF mutation and she does not have it. So, I forget the name of the drug, but its not an option. I’m just getting involved in this and I wish I knew earlier that yervoy only works for 15%! We are meeting with oncologist next week to hear suggestions on what next. I want to be educated and prepared for that meeting.
      • November 17, 2012 at 7:18 pm
      Pauline
      Participant
      Thanks for your reply! It was tested for BRAF mutation and she does not have it. So, I forget the name of the drug, but its not an option. I’m just getting involved in this and I wish I knew earlier that yervoy only works for 15%! We are meeting with oncologist next week to hear suggestions on what next. I want to be educated and prepared for that meeting.
Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics