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pattylynn

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      pattylynn
      Participant

        I just read your e mail and I am in a similar spot, becuase I have a melanoma on my outer ear. Of course this is all very new to me. I joined the chat room becuase I wanted to find others who have had this on their ear and find out what their experience has been.

        Five times! OMG!  I cannot imagine how scared and frustrated you must be!

        I just got diagnosed, but by reading the path report (I am an RN) it looks like an aggresive type of melanoma. I am scheduled to have the 2 step surgery starting next week. They will do the lymph node maping and take out the part of the ear and then a week later put it all back together after they get a results from pathology.

        Questions: Was your thing on your ear on the top outer rim? How did they reconstruct your ear? What do they do when they just want a biopsy of the lymph node? Do they just do it with a needle or do they open your neck up?

        Please give me an update on how you are doing. 

        I have great family support and live near a really good university medical center, but I am also scared  !!!!! No one ever in my family has had cancer and I have never known the "C" word to end up on my chart. And I am not a sun worshipper at all. 

        pattylynn
        Participant

          I just read your e mail and I am in a similar spot, becuase I have a melanoma on my outer ear. Of course this is all very new to me. I joined the chat room becuase I wanted to find others who have had this on their ear and find out what their experience has been.

          Five times! OMG!  I cannot imagine how scared and frustrated you must be!

          I just got diagnosed, but by reading the path report (I am an RN) it looks like an aggresive type of melanoma. I am scheduled to have the 2 step surgery starting next week. They will do the lymph node maping and take out the part of the ear and then a week later put it all back together after they get a results from pathology.

          Questions: Was your thing on your ear on the top outer rim? How did they reconstruct your ear? What do they do when they just want a biopsy of the lymph node? Do they just do it with a needle or do they open your neck up?

          Please give me an update on how you are doing. 

          I have great family support and live near a really good university medical center, but I am also scared  !!!!! No one ever in my family has had cancer and I have never known the "C" word to end up on my chart. And I am not a sun worshipper at all. 

          pattylynn
          Participant

            Wow, I have been hoping to talk to someone who is going through what I am going to face and I was so glad to get your post!

            Mine is nodular, Stage II with ulceration and bleeding. What you describe is what they plan on doing on my ear for reconstruction. They will keep the wound open for a week until they get the results from the lymph nodes and also in case they need to remove more of the ear. 

            I'm glad I'm not a bald man who could not hide the ear with hair! 

            Of course my main concern is that it has not spread into the lymphs. Did it with you? Have you had any recurrences?  Please tell me how your recovery was?  Any bits of advice or tips? Do you have any photos you could send directly to my e mail accrount? 

            Thank you so so much for the support!  I will be writing you again, if that's okay. 

            pattylynn
            Participant

              Wow, I have been hoping to talk to someone who is going through what I am going to face and I was so glad to get your post!

              Mine is nodular, Stage II with ulceration and bleeding. What you describe is what they plan on doing on my ear for reconstruction. They will keep the wound open for a week until they get the results from the lymph nodes and also in case they need to remove more of the ear. 

              I'm glad I'm not a bald man who could not hide the ear with hair! 

              Of course my main concern is that it has not spread into the lymphs. Did it with you? Have you had any recurrences?  Please tell me how your recovery was?  Any bits of advice or tips? Do you have any photos you could send directly to my e mail accrount? 

              Thank you so so much for the support!  I will be writing you again, if that's okay. 

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