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nickmac56

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      nickmac56
      Participant

      thank you all for your kind words. Here is a link to her obituary

      http://www.legacy.com/obituaries/seattletimes/obituary.aspx?n=meagan-macphee&pid=154756812

      Nick

      nickmac56
      Participant

      thank you all for your kind words. Here is a link to her obituary

      http://www.legacy.com/obituaries/seattletimes/obituary.aspx?n=meagan-macphee&pid=154756812

      Nick

      nickmac56
      Participant

      thank you all for your kind words. Here is a link to her obituary

      http://www.legacy.com/obituaries/seattletimes/obituary.aspx?n=meagan-macphee&pid=154756812

      Nick

      nickmac56
      Participant

      thank you all for your kind words. Here is a link to her obituary

      http://www.legacy.com/obituaries/seattletimes/obituary.aspx?n=meagan-macphee&pid=154756812

      Nick

      nickmac56
      Participant

      thank you all for your kind words. Here is a link to her obituary

      http://www.legacy.com/obituaries/seattletimes/obituary.aspx?n=meagan-macphee&pid=154756812

      Nick

      nickmac56
      Participant

      thank you all for your kind words. Here is a link to her obituary

      http://www.legacy.com/obituaries/seattletimes/obituary.aspx?n=meagan-macphee&pid=154756812

      Nick

      nickmac56
      Participant

      On my wife's 3rd and 4th small brain tumors, which were gammaknifed, the smallest one disappeared and the other one shrunk by 40% thirty days after treatment. According to our radiation oncologist every person is different in their tumors' radiation sensitivity. 

      Good luck!

      nickmac56
      Participant

      On my wife's 3rd and 4th small brain tumors, which were gammaknifed, the smallest one disappeared and the other one shrunk by 40% thirty days after treatment. According to our radiation oncologist every person is different in their tumors' radiation sensitivity. 

      Good luck!

      nickmac56
      Participant

      On my wife's 3rd and 4th small brain tumors, which were gammaknifed, the smallest one disappeared and the other one shrunk by 40% thirty days after treatment. According to our radiation oncologist every person is different in their tumors' radiation sensitivity. 

      Good luck!

      nickmac56
      Participant

      you might look into Abraxane, a chemo which crosses the blood brain barrier. My wife was on it, but unfortunately has had to cease that treatment for unrelated reasons. 

      nickmac56
      Participant

      you might look into Abraxane, a chemo which crosses the blood brain barrier. My wife was on it, but unfortunately has had to cease that treatment for unrelated reasons. 

      nickmac56
      Participant

      you might look into Abraxane, a chemo which crosses the blood brain barrier. My wife was on it, but unfortunately has had to cease that treatment for unrelated reasons. 

      nickmac56
      Participant

      Lisa – so sorry to her of this development. As some have said in reply, you have to make it your own choice – you won't get answers for you from statistics. But as Frank points out, and I concur, having done a ton of research on the brain  – radiation of any kind is typically palliative. What is worse, and I hope I'm wrong, but once you've had brain bleeding, you are ineligible for most, if not all, clinical trials. My wife was turned down at the key melanoma centers because of it. 

      She has had lots of SRS treatment – gamma and cyber. She's getting ready for a course of WBR. Ever since her tumor burst and she had the bleeding the tumors pop up regularly. In hindsight, I might have been more aggressive about WBR earlier – rather than getting into a cycle of scan and zap. So my advice is to go for it – be aggressive  – the 20% of people who have WBR side effects (short term memory loss, inability to multi-task) are happy to deal with them if it buys them more time. 

      Good luck with the decision and once you make it – press on!

      Nick

      nickmac56
      Participant

      Lisa – so sorry to her of this development. As some have said in reply, you have to make it your own choice – you won't get answers for you from statistics. But as Frank points out, and I concur, having done a ton of research on the brain  – radiation of any kind is typically palliative. What is worse, and I hope I'm wrong, but once you've had brain bleeding, you are ineligible for most, if not all, clinical trials. My wife was turned down at the key melanoma centers because of it. 

      She has had lots of SRS treatment – gamma and cyber. She's getting ready for a course of WBR. Ever since her tumor burst and she had the bleeding the tumors pop up regularly. In hindsight, I might have been more aggressive about WBR earlier – rather than getting into a cycle of scan and zap. So my advice is to go for it – be aggressive  – the 20% of people who have WBR side effects (short term memory loss, inability to multi-task) are happy to deal with them if it buys them more time. 

      Good luck with the decision and once you make it – press on!

      Nick

      nickmac56
      Participant

      Lisa – so sorry to her of this development. As some have said in reply, you have to make it your own choice – you won't get answers for you from statistics. But as Frank points out, and I concur, having done a ton of research on the brain  – radiation of any kind is typically palliative. What is worse, and I hope I'm wrong, but once you've had brain bleeding, you are ineligible for most, if not all, clinical trials. My wife was turned down at the key melanoma centers because of it. 

      She has had lots of SRS treatment – gamma and cyber. She's getting ready for a course of WBR. Ever since her tumor burst and she had the bleeding the tumors pop up regularly. In hindsight, I might have been more aggressive about WBR earlier – rather than getting into a cycle of scan and zap. So my advice is to go for it – be aggressive  – the 20% of people who have WBR side effects (short term memory loss, inability to multi-task) are happy to deal with them if it buys them more time. 

      Good luck with the decision and once you make it – press on!

      Nick

Viewing 14 reply threads
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