Maxapooh
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Maxapooh

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      • April 23, 2016 at 3:01 pm
      Maxapooh
      Participant

      Hi Ed! Thank you for the information. I' ve been on Braf/mek since last August, they added Keytruda this March. My last ct scan showed spread to lungs, spleen and groin. As for now I have leptomeningeal metasatses , metasatses in liver, ovaries, lungs, spleen, bones and lymph node in groin. My hip bone has been destroyed by radiation. I have nothing to lose. I'm gonna go for this trial and if it doesn't  work for me, I have an option to try Temozolomide.

       

      • April 23, 2016 at 3:01 pm
      Maxapooh
      Participant

      Hi Ed! Thank you for the information. I' ve been on Braf/mek since last August, they added Keytruda this March. My last ct scan showed spread to lungs, spleen and groin. As for now I have leptomeningeal metasatses , metasatses in liver, ovaries, lungs, spleen, bones and lymph node in groin. My hip bone has been destroyed by radiation. I have nothing to lose. I'm gonna go for this trial and if it doesn't  work for me, I have an option to try Temozolomide.

       

      • April 23, 2016 at 3:01 pm
      Maxapooh
      Participant

      Hi Ed! Thank you for the information. I' ve been on Braf/mek since last August, they added Keytruda this March. My last ct scan showed spread to lungs, spleen and groin. As for now I have leptomeningeal metasatses , metasatses in liver, ovaries, lungs, spleen, bones and lymph node in groin. My hip bone has been destroyed by radiation. I have nothing to lose. I'm gonna go for this trial and if it doesn't  work for me, I have an option to try Temozolomide.

       

      • April 21, 2016 at 6:29 am
      Maxapooh
      Participant

      Thank you, Barb:)

      • April 21, 2016 at 6:29 am
      Maxapooh
      Participant

      Thank you, Barb:)

      • April 21, 2016 at 6:29 am
      Maxapooh
      Participant

      Thank you, Barb:)

      • November 29, 2015 at 3:15 pm
      Maxapooh
      Participant

      Tom, thank you for your support and kind words. My insurance will not cover any costs outside Israel. The information about lodging is very helpful since the expenses for treatments are definitely gonna be high.

      Thank you once again

      • November 29, 2015 at 3:15 pm
      Maxapooh
      Participant

      Tom, thank you for your support and kind words. My insurance will not cover any costs outside Israel. The information about lodging is very helpful since the expenses for treatments are definitely gonna be high.

      Thank you once again

      • November 29, 2015 at 3:15 pm
      Maxapooh
      Participant

      Tom, thank you for your support and kind words. My insurance will not cover any costs outside Israel. The information about lodging is very helpful since the expenses for treatments are definitely gonna be high.

      Thank you once again

      • November 28, 2015 at 2:21 pm
      Maxapooh
      Participant

      Hi Kylez, 

      I really appreciate your help and would love to get more information. I have already sent a request to Md Anderson. Hopefully they will get back to me soon. Time is precious. 

      How long is the treatment? How is your husband doing? Does he have many side effects?

      Thank you, Maria

      • November 28, 2015 at 2:21 pm
      Maxapooh
      Participant

      Hi Kylez, 

      I really appreciate your help and would love to get more information. I have already sent a request to Md Anderson. Hopefully they will get back to me soon. Time is precious. 

      How long is the treatment? How is your husband doing? Does he have many side effects?

      Thank you, Maria

      • November 28, 2015 at 2:21 pm
      Maxapooh
      Participant

      Hi Kylez, 

      I really appreciate your help and would love to get more information. I have already sent a request to Md Anderson. Hopefully they will get back to me soon. Time is precious. 

      How long is the treatment? How is your husband doing? Does he have many side effects?

      Thank you, Maria

      • November 28, 2015 at 2:13 pm
      Maxapooh
      Participant

      Celeste, 

      Thank you so much. Btw I really love your blog. Not the first time reading it:) You are amazing!!!

       

      • November 28, 2015 at 2:13 pm
      Maxapooh
      Participant

      Celeste, 

      Thank you so much. Btw I really love your blog. Not the first time reading it:) You are amazing!!!

       

      • November 28, 2015 at 2:13 pm
      Maxapooh
      Participant

      Celeste, 

      Thank you so much. Btw I really love your blog. Not the first time reading it:) You are amazing!!!

       

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