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MarkL87

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      MarkL87
      Participant

      Thanks, both. Just trying to understand the report more. Does anyone have any insight as to what the actual words mean?

      MarkL87
      Participant

      Thanks, both. Just trying to understand the report more. Does anyone have any insight as to what the actual words mean?

      MarkL87
      Participant

      Thanks, both. Just trying to understand the report more. Does anyone have any insight as to what the actual words mean?

      MarkL87
      Participant

      Update for everyone: we talked through it today and were able to receive an informal "second opinion" which basically said we were crazy for not doing a SLNB so we're going to go through with it on Tuesday.

       

      One question – we are definitely not set on doing the full lymph node removal should the procedure turn up positive. That's not something that's done automatically during the SLNB procedure, right? 

      MarkL87
      Participant

      Update for everyone: we talked through it today and were able to receive an informal "second opinion" which basically said we were crazy for not doing a SLNB so we're going to go through with it on Tuesday.

       

      One question – we are definitely not set on doing the full lymph node removal should the procedure turn up positive. That's not something that's done automatically during the SLNB procedure, right? 

      MarkL87
      Participant

      Update for everyone: we talked through it today and were able to receive an informal "second opinion" which basically said we were crazy for not doing a SLNB so we're going to go through with it on Tuesday.

       

      One question – we are definitely not set on doing the full lymph node removal should the procedure turn up positive. That's not something that's done automatically during the SLNB procedure, right? 

      MarkL87
      Participant

      Does anyone have any experience with the MSK nomogram for melanoma? 

      MarkL87
      Participant

      Does anyone have any experience with the MSK nomogram for melanoma? 

      MarkL87
      Participant

      Does anyone have any experience with the MSK nomogram for melanoma? 

      MarkL87
      Participant

      That's what I thought as well.  Very confusing to hear a Doctor that has worked with/continues to partner with MSK give advice like this that we just weren't expecting.

      Are there adverse consequences to waiting until we receive a second opinion to go through with the surgery? 

      Also – how dangerous is the surgery? The doctor acted like the potential for adverse consequences was quite high.

      MarkL87
      Participant

      That's what I thought as well.  Very confusing to hear a Doctor that has worked with/continues to partner with MSK give advice like this that we just weren't expecting.

      Are there adverse consequences to waiting until we receive a second opinion to go through with the surgery? 

      Also – how dangerous is the surgery? The doctor acted like the potential for adverse consequences was quite high.

      MarkL87
      Participant

      That's what I thought as well.  Very confusing to hear a Doctor that has worked with/continues to partner with MSK give advice like this that we just weren't expecting.

      Are there adverse consequences to waiting until we receive a second opinion to go through with the surgery? 

      Also – how dangerous is the surgery? The doctor acted like the potential for adverse consequences was quite high.

      MarkL87
      Participant

      Sorry if it was unclear, but i wasn't advocating against the WLE (we're setting that up as soon as possible) i was just wondering whether we had time to go through with the WLE and then decide on the SLNB.

      It seems based on your answer that we do not.

      I am pretty upset that the advice we were given by a very trusted (and highly respected w/ melanoma) surgeon seems to conflict with all the literature, people here, etc. so just trying to get all our facts straight.  

      MarkL87
      Participant

      Sorry if it was unclear, but i wasn't advocating against the WLE (we're setting that up as soon as possible) i was just wondering whether we had time to go through with the WLE and then decide on the SLNB.

      It seems based on your answer that we do not.

      I am pretty upset that the advice we were given by a very trusted (and highly respected w/ melanoma) surgeon seems to conflict with all the literature, people here, etc. so just trying to get all our facts straight.  

      MarkL87
      Participant

      Sorry if it was unclear, but i wasn't advocating against the WLE (we're setting that up as soon as possible) i was just wondering whether we had time to go through with the WLE and then decide on the SLNB.

      It seems based on your answer that we do not.

      I am pretty upset that the advice we were given by a very trusted (and highly respected w/ melanoma) surgeon seems to conflict with all the literature, people here, etc. so just trying to get all our facts straight.  

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