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Marie1972

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      Marie1972
      Participant

        Also my daughter's scare was when she 4 and had a spiz nevi on her ear. It was removed and biopsied and ended up being sent down to California to be evaluated there because it was unclear if it was malignant. In the end they decided it wasn't. Not sure if it is related to melanoma. My husband's grandfather and uncle both had melanoma we just found out.

         

         

        Marie1972
        Participant

          Thank you for letting me know what to expect. I do SO much better if I know ahead of time what the next step is and especially if it precautionary rather than because things are looking bad. I am really struggling with all this emotionally because of course my mind goes to the worst case scenerio. It is something I really need to work on. We lost our little boy very suddenly to HLH and  another son in pregnancy to unknown reasons. My weakest spot is anything medical or health related with my family. So to hear this diagnoses with my husband, I have been a mess emotionally. Thank you guy so much for the support and the information. Looking up things online can make it all so scary but hearing from people that have actually been in this spot paints such a more positive picture.  I am so glad I found this board. Thank you!

          Marie1972
          Participant

             I am so glad to hear that punch biopsies are good and that helps already so much to know to have a dermatologist that specializes in melanoma. I had made my husband an appointment with one in case the referral didn't go through. I was going to cancel because he did get a referral to the oncologist at OHSU, but it sounds like he should keep it as he will need to have follow up care with a dermatologist and the oncologist. Thank you so much for the advise and help!

            Marie1972
            Participant

              Thank you so much for your help. I am a bit overwhelmed and honestly scared. It turns out the "doctor" is just a physicians assistant and has not even attempted to get a hold of the doctor. I did speak to the doctor and he was not aware of melanoma case from his assistant and runs a separate costmotology practice. He said he will "swing" by the zoom care office today or tomorrow and make sure it gets into the system for the referral. He said his assistant usually refers the melanoma cases to him, but he hasn't heard anything about this case. And he knows how hard it is for a patient to get a hold of anyone at zoom care, that it is just a chat system online that is difficult to navigate. Honestly he didn't inspire much confidence either. Zoom care is franchise where you can run in for quick appointments the same day.

              I only saw this mole on my husband for the first time a few weeks ago,  He said it had been growing and changing over the last several  months. I knew immediately it had all the red flags (ABCDE) you are supposed to watch for as my daughter went through a scare several years ago with spitzoid nevi that was removed. It came back non malignant. I would have sent my husband in sooner had I seen his mole before now. 

              Hearing that the absence of regression tells us that is the definite depth makes me feel much better as this was just a punch biopsy sent in. Thank you so much. This is all so new to us. 

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