magnus31
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magnus31

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      • April 14, 2015 at 5:51 pm
      magnus31
      Participant

      This sounds very interesting, thanks for sharing. Do you know which type of lesions are eligible for this treatment? Cutanous versus lesions in organs, etc? A link to more information about this therapy study would be appreciated.

      Best,

      Magnus

      • April 14, 2015 at 5:51 pm
      magnus31
      Participant

      This sounds very interesting, thanks for sharing. Do you know which type of lesions are eligible for this treatment? Cutanous versus lesions in organs, etc? A link to more information about this therapy study would be appreciated.

      Best,

      Magnus

      • April 14, 2015 at 5:51 pm
      magnus31
      Participant

      This sounds very interesting, thanks for sharing. Do you know which type of lesions are eligible for this treatment? Cutanous versus lesions in organs, etc? A link to more information about this therapy study would be appreciated.

      Best,

      Magnus

      • March 30, 2015 at 9:17 pm
      magnus31
      Participant

      Hi there,

       

      I was offered a 12 month Interferon treatment programme after I was diagnosed with 3A melanoma with primary on my upper arm. I was warned about side effects but told this was the only medical option at the point (adjuvant therapy).

      I decided to go for it. I hear many report about unbearable side effects. Fatigue and flu-like symptoms. I personally would characterize my side effects as minor. I usually felt a bit tired the day after taking them. Toward the end of the 12 month period, I started feeling anxious and claustrophobic, but I did manage to live with these without too many problems. Physically, I was quite fit, managing to run long 10K km runs two-three times every week, like I used to before starting treatment.

      Good luck with your choice.

       

      Magnus

      • March 30, 2015 at 9:17 pm
      magnus31
      Participant

      Hi there,

       

      I was offered a 12 month Interferon treatment programme after I was diagnosed with 3A melanoma with primary on my upper arm. I was warned about side effects but told this was the only medical option at the point (adjuvant therapy).

      I decided to go for it. I hear many report about unbearable side effects. Fatigue and flu-like symptoms. I personally would characterize my side effects as minor. I usually felt a bit tired the day after taking them. Toward the end of the 12 month period, I started feeling anxious and claustrophobic, but I did manage to live with these without too many problems. Physically, I was quite fit, managing to run long 10K km runs two-three times every week, like I used to before starting treatment.

      Good luck with your choice.

       

      Magnus

      • June 11, 2017 at 11:58 am
      magnus31
      Participant

      Thank you Tom for this, very useful in order to understand how clinical trials work in the US.

      • June 11, 2017 at 11:57 am
      magnus31
      Participant

      Thank you Patrisa, will post to melanomeinternational.org which I did not know about.

      • June 11, 2017 at 11:56 am
      magnus31
      Participant

      Thank you TP! Will get in touch with your contact in Poland for more info. Best.

      • May 14, 2017 at 4:40 pm
      magnus31
      Participant

      Thanks Gary for replying to my post. It encourages me to read about other patients in similar situations. I am very happy to read about your partially responding to the meds. Truly hoping the meds will control the disease for years to come. I particularly found you "a little denial is not a bad thing"-remark very useful as I think stage IV life quality is often deteriorated by endless worrying and "what if" thinking.

       

      All the best to you,

      Magnus

      • June 28, 2016 at 5:54 pm
      magnus31
      Participant

      Thanks for your reply, Tom.

      I traveled to Africa last summer, on Nivo, and was approved malaria pills as well. I'll chase my doc on whether the Nivo/yellow fever combo is advisable. May I ask why you would avoid East and Central Africa?

      I hope you are responding well to Nivo, I've been on for 18 months and have continued response.

      Best,

      Magnus

      • June 28, 2016 at 5:54 pm
      magnus31
      Participant

      Thanks for your reply, Tom.

      I traveled to Africa last summer, on Nivo, and was approved malaria pills as well. I'll chase my doc on whether the Nivo/yellow fever combo is advisable. May I ask why you would avoid East and Central Africa?

      I hope you are responding well to Nivo, I've been on for 18 months and have continued response.

      Best,

      Magnus

      • June 28, 2016 at 5:54 pm
      magnus31
      Participant

      Thanks for your reply, Tom.

      I traveled to Africa last summer, on Nivo, and was approved malaria pills as well. I'll chase my doc on whether the Nivo/yellow fever combo is advisable. May I ask why you would avoid East and Central Africa?

      I hope you are responding well to Nivo, I've been on for 18 months and have continued response.

      Best,

      Magnus

      • April 14, 2015 at 5:49 pm
      magnus31
      Participant

      Hi Terrie,

      thanks for sharing the good news. I am happy to hear your lesions are shrinking! I have my new 2 month check-up tomorrow and hoping for the best. And as far as vitiligo is concerned… Bring it on!

       

      Best,

      Magnus

      • April 14, 2015 at 5:49 pm
      magnus31
      Participant

      Hi Terrie,

      thanks for sharing the good news. I am happy to hear your lesions are shrinking! I have my new 2 month check-up tomorrow and hoping for the best. And as far as vitiligo is concerned… Bring it on!

       

      Best,

      Magnus

      • April 14, 2015 at 5:49 pm
      magnus31
      Participant

      Hi Terrie,

      thanks for sharing the good news. I am happy to hear your lesions are shrinking! I have my new 2 month check-up tomorrow and hoping for the best. And as far as vitiligo is concerned… Bring it on!

       

      Best,

      Magnus

Viewing 4 reply threads
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