Lovemymum

Hi kbc123,

I'm not  a patient but a caregiver who is taking care of my mum – recently diagnosed stage 4 – brain, lungs and stomach. Her primary was on her back which began as a stage 2 about  7 years ago.

I can't begin to imagine how you are feeling right now, I only know what I feel, the thoughts I have had as a person who loves and adores her mum and is terrified every day about what the future may hold. My mum and I have banded together and are determined to fight this beast all the way! The advice I can give you after going through this for the last 5 weeks is stay strong, stay positive, eat well, get advice from the people on this site who are going through the same thing. Maybe try meditation to help with those 'scary' thoughts. Don't ever ask for statistics, stay away from google and stay away from negative people! Most of all don't let ANYONE ever take away your hope. You will and you can get through this, everyone is different and every case is different, I have read what I think is every positive story out there and believe me there are SO many!

I have a huge list of wonderful, inspirational posts from people on this site and others that I have put together for my mum, mostly success stories that she reads every night before she goes to bed, I know for sure that this helps with the sleepless nights, let me know if you would like me to email them through to you.

Take care of yourself.

xx

Hi kbc123,

I'm not  a patient but a caregiver who is taking care of my mum – recently diagnosed stage 4 – brain, lungs and stomach. Her primary was on her back which began as a stage 2 about  7 years ago.

I can't begin to imagine how you are feeling right now, I only know what I feel, the thoughts I have had as a person who loves and adores her mum and is terrified every day about what the future may hold. My mum and I have banded together and are determined to fight this beast all the way! The advice I can give you after going through this for the last 5 weeks is stay strong, stay positive, eat well, get advice from the people on this site who are going through the same thing. Maybe try meditation to help with those 'scary' thoughts. Don't ever ask for statistics, stay away from google and stay away from negative people! Most of all don't let ANYONE ever take away your hope. You will and you can get through this, everyone is different and every case is different, I have read what I think is every positive story out there and believe me there are SO many!

I have a huge list of wonderful, inspirational posts from people on this site and others that I have put together for my mum, mostly success stories that she reads every night before she goes to bed, I know for sure that this helps with the sleepless nights, let me know if you would like me to email them through to you.

Take care of yourself.

xx

Wow! That's all I can really say. I was truly happy to read the title of this post until I read the replies.

My mother is newly diagnosed stage 4, brain, lung and stomach and I feel like my whole world has been shattered in the last month. I am an only child, no other (blood) family apart from my mum and am 6 months pregnant with my first baby. My mum and I are best friends, she is my world and I am terrified that I am going to loose her every single day. 

I am not in denial, we know it's bad, I started visiting this forum about 3 weeks ago looking for hope and inspiration and honestly, for stories of people who have survived this disease. You have all been there, and I know you are aware of the emotional stages that one goes through after a diagnosis like this. Personally, the stage we are at, although I'm encouraged by the battlers in this forum, the amazing stories of people who never give up the fight and the courage of those who have lost it, I, along with my mum feel a weight lift when we read the story of someone who has battled and won! Those who are NED, those with shruken tumours or sucess with treatment. I WANT to read these stories, these are what gives me hope at the moment.

No, success cannot be defined, but don't you think if a dedicated area could help someone like me and my mum along on this journey it would be positive?

I search the net every day for stories of survival, I send them to my mum and I know that this helps her sleep at night. I know they help ease what I imagine are the terrifying thoughts going through her head every day while we wait to hear what they can or can't do for her. I have now run out of those stories. I asuume when Jake says 'success stories' he means 'survival stories'.

I thought this forum was for support, where people come to  'help' one another and tell their stories. I am truly saddened to read some of these sarcastic, unsupportive and critical replies. The replies to this post just seem to be a group that have banded together to attack the original poster that maybe they have had disagreements with before.

Jake, I don't know you, but for where I am in this journey, I truly appreciate your suggestion. Thank you and I think this is a great idea.

Wow! That's all I can really say. I was truly happy to read the title of this post until I read the replies.

My mother is newly diagnosed stage 4, brain, lung and stomach and I feel like my whole world has been shattered in the last month. I am an only child, no other (blood) family apart from my mum and am 6 months pregnant with my first baby. My mum and I are best friends, she is my world and I am terrified that I am going to loose her every single day. 

I am not in denial, we know it's bad, I started visiting this forum about 3 weeks ago looking for hope and inspiration and honestly, for stories of people who have survived this disease. You have all been there, and I know you are aware of the emotional stages that one goes through after a diagnosis like this. Personally, the stage we are at, although I'm encouraged by the battlers in this forum, the amazing stories of people who never give up the fight and the courage of those who have lost it, I, along with my mum feel a weight lift when we read the story of someone who has battled and won! Those who are NED, those with shruken tumours or sucess with treatment. I WANT to read these stories, these are what gives me hope at the moment.

No, success cannot be defined, but don't you think if a dedicated area could help someone like me and my mum along on this journey it would be positive?

I search the net every day for stories of survival, I send them to my mum and I know that this helps her sleep at night. I know they help ease what I imagine are the terrifying thoughts going through her head every day while we wait to hear what they can or can't do for her. I have now run out of those stories. I asuume when Jake says 'success stories' he means 'survival stories'.

I thought this forum was for support, where people come to  'help' one another and tell their stories. I am truly saddened to read some of these sarcastic, unsupportive and critical replies. The replies to this post just seem to be a group that have banded together to attack the original poster that maybe they have had disagreements with before.

Jake, I don't know you, but for where I am in this journey, I truly appreciate your suggestion. Thank you and I think this is a great idea.