Leon

Thanks very much Mark. I live in Kosovo where immunotherapy is a fairly new treatment and doctors are not very experienced with its side affects and the management of those side effects.

I will mention Prednisone to my oncologist/hepatologist and see what they say. I am a bit hesitant to go with Tacrolimus if I am honest.

Thank you very much for your input. Much appreciated!

Hope all is well with your health !

Best regards,
Luan

P.S> I requested to join the suggested Facebook page-awaiting confirmation. Though I think its only for stage IV and I am on stage III. I hope they do accept my request, as always very useful to get input from those that have been through the same journey.

Hi Apologize, didn’t know it was marked as private. Here is the original reply:

Thanks Ed Williams for your reply-I will ask to join the Facebook group.
Thanks Celeste also. I was prescribed Mycophenolate 2×1 and was told to stop after 3 days since blood test results didnt show any changes. I would have thought that 3 days is too short for the medication to work and as you say yone would need more time but off course stopped based on oncologists advise. Currently only on Urabazon+pantraprazol intra-venously. If you have been through this yourself (or know someone that has) can you let me know the actual medication/order/length it was prescribed for helping with the liver enzyme problem. They mentioned Tacrolimus here but also said it is high risk drug and that it has to be administered as an inpatient in hospital. The hospital here doesn’t have experience in administering it and dealing with any potential side effects.

Happy to have a chat in private.

Thanks very much for your replies-much appreciated as a bit stuck here here I come from….

thanks very much Bubbles. Will have a read through an share with my oncologist.