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Leonardostagg

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      Leonardostagg
      Participant

        Mat,

        my storyc is very similar to yours. I had a stage 1a melanoma removed from my underarm 3 years ago. My sentinel gland was completely clean and was told to come back every 6 months to get a check up. I was told I was a very lucky individual. After doing so for three years with excellent results, I started feeling pain in my left knee this past January. I thought it was a meniscus problem, suddenly I started feeling a cramp on my right leg. I was told by the doctor that since I had pain in my left knee, that I was overcompensating with my right leg and that was causing the "cramp" on my right leg. Finally after the pain became unbearable I had an MRI done, where two large tumors were found, one on my left femur and the other on my right tibia. The doctor then asked me if I had US insurance (I am from Ecuador ) and advised me to fly immediately to the US.  I flew to the Mayo Clinic in Rochester only to find out once I was already there, that the insurance had cancelled my policy a few months before by sending me a letter to an address that had never been mine. After a terrible fight with them with all the stress that the quarrel produces, they agreed that they would pay for all the medical costs until April 18th 2014, the date when the insurance was scheduled to expire. I was operated on both legs on March 19th. I have been on Tafinlar and Mekinist since the first week of April. I am flying to the Mayo Clinic on June 3rd and have appointments on June 5th. I feel that both tumors have been reduced considerably and that I can get radiation treatment immediately .  My fourth grandson is going to be born next Wednesday, and it is the first one that will have my name and last name. I feel these drugs have made it possible for me to live a little longer and appreciate some wonderful moments that I had never dreamed of. 

        In the 50 days that I have been taking Tafiinlar and Mekinist I have had 6 days of fever, 2 days of hot spells at night and about two days a week of diarrhea. A lot better tha what I expected.

        Regards,

        Leonardo

        Leonardostagg
        Participant

          Mat,

          my storyc is very similar to yours. I had a stage 1a melanoma removed from my underarm 3 years ago. My sentinel gland was completely clean and was told to come back every 6 months to get a check up. I was told I was a very lucky individual. After doing so for three years with excellent results, I started feeling pain in my left knee this past January. I thought it was a meniscus problem, suddenly I started feeling a cramp on my right leg. I was told by the doctor that since I had pain in my left knee, that I was overcompensating with my right leg and that was causing the "cramp" on my right leg. Finally after the pain became unbearable I had an MRI done, where two large tumors were found, one on my left femur and the other on my right tibia. The doctor then asked me if I had US insurance (I am from Ecuador ) and advised me to fly immediately to the US.  I flew to the Mayo Clinic in Rochester only to find out once I was already there, that the insurance had cancelled my policy a few months before by sending me a letter to an address that had never been mine. After a terrible fight with them with all the stress that the quarrel produces, they agreed that they would pay for all the medical costs until April 18th 2014, the date when the insurance was scheduled to expire. I was operated on both legs on March 19th. I have been on Tafinlar and Mekinist since the first week of April. I am flying to the Mayo Clinic on June 3rd and have appointments on June 5th. I feel that both tumors have been reduced considerably and that I can get radiation treatment immediately .  My fourth grandson is going to be born next Wednesday, and it is the first one that will have my name and last name. I feel these drugs have made it possible for me to live a little longer and appreciate some wonderful moments that I had never dreamed of. 

          In the 50 days that I have been taking Tafiinlar and Mekinist I have had 6 days of fever, 2 days of hot spells at night and about two days a week of diarrhea. A lot better tha what I expected.

          Regards,

          Leonardo

          Leonardostagg
          Participant

            Mat,

            my storyc is very similar to yours. I had a stage 1a melanoma removed from my underarm 3 years ago. My sentinel gland was completely clean and was told to come back every 6 months to get a check up. I was told I was a very lucky individual. After doing so for three years with excellent results, I started feeling pain in my left knee this past January. I thought it was a meniscus problem, suddenly I started feeling a cramp on my right leg. I was told by the doctor that since I had pain in my left knee, that I was overcompensating with my right leg and that was causing the "cramp" on my right leg. Finally after the pain became unbearable I had an MRI done, where two large tumors were found, one on my left femur and the other on my right tibia. The doctor then asked me if I had US insurance (I am from Ecuador ) and advised me to fly immediately to the US.  I flew to the Mayo Clinic in Rochester only to find out once I was already there, that the insurance had cancelled my policy a few months before by sending me a letter to an address that had never been mine. After a terrible fight with them with all the stress that the quarrel produces, they agreed that they would pay for all the medical costs until April 18th 2014, the date when the insurance was scheduled to expire. I was operated on both legs on March 19th. I have been on Tafinlar and Mekinist since the first week of April. I am flying to the Mayo Clinic on June 3rd and have appointments on June 5th. I feel that both tumors have been reduced considerably and that I can get radiation treatment immediately .  My fourth grandson is going to be born next Wednesday, and it is the first one that will have my name and last name. I feel these drugs have made it possible for me to live a little longer and appreciate some wonderful moments that I had never dreamed of. 

            In the 50 days that I have been taking Tafiinlar and Mekinist I have had 6 days of fever, 2 days of hot spells at night and about two days a week of diarrhea. A lot better tha what I expected.

            Regards,

            Leonardo

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