kris herrington

Hi Kyle,

Thanks for the info, yes  I am aware of the MDX-1106. The three places running the trials now have waiting lists. I have an appt at Sloan on 9-26. I hate that they out you out so far for appts.

Even if i go out there, there are not quarentees that I will get on the trial. This is actually and ipi/MDX combo trial.

How is the Ipi working for you? How long have you been on it? How are the side effects? Do you know if it is working? How is your friend doing on the MDX-1106?

Have you heard any stories of people doing the NCI trials with Rosenberg? Have you considered participating in this trial?

Not really sure what direction I should persue… really struggling to find the right answer.

Kris

Hi Kyle,

Thanks for the info, yes  I am aware of the MDX-1106. The three places running the trials now have waiting lists. I have an appt at Sloan on 9-26. I hate that they out you out so far for appts.

Even if i go out there, there are not quarentees that I will get on the trial. This is actually and ipi/MDX combo trial.

How is the Ipi working for you? How long have you been on it? How are the side effects? Do you know if it is working? How is your friend doing on the MDX-1106?

Have you heard any stories of people doing the NCI trials with Rosenberg? Have you considered participating in this trial?

Not really sure what direction I should persue… really struggling to find the right answer.

Kris

Thanks, I was hoping to hear from some survivors.

I have tied the following –

Surgery, not an otpion now

BRAF- 3 months, didn't work

Oncovex, did work on the one spot but has now spread

IL-2 – didn't work

Radiation

I am holding out on Ipi as it is only 10% sucessful and is now available to all and the doc said to go find other trials first as if i take the ipi it will iliminate me from other trials. 

My second oncologist told me to get my but to the NCI and dont pass go.

I will ask more questions when i am there on tuesday.

Thanks, I was hoping to hear from some survivors.

I have tied the following –

Surgery, not an otpion now

BRAF- 3 months, didn't work

Oncovex, did work on the one spot but has now spread

IL-2 – didn't work

Radiation

I am holding out on Ipi as it is only 10% sucessful and is now available to all and the doc said to go find other trials first as if i take the ipi it will iliminate me from other trials. 

My second oncologist told me to get my but to the NCI and dont pass go.

I will ask more questions when i am there on tuesday.

Thanks Linda. I hope she is doing well also. I will be going on tuesday for my consult so I am praying that they will accept me. I've done the IL- and its not fun. But its all certainly worth it if it works. Is Val stage 4?   

Thanks Linda. I hope she is doing well also. I will be going on tuesday for my consult so I am praying that they will accept me. I've done the IL- and its not fun. But its all certainly worth it if it works. Is Val stage 4?   

Hi Linda,

Yes this is the treatment I was speaking of. How is Val doing? What part of the treatment is she in right now? Trying to find out what I can expect.

Thanks!

Hi Linda,

Yes this is the treatment I was speaking of. How is Val doing? What part of the treatment is she in right now? Trying to find out what I can expect.

Thanks!