Jwfd808
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Jwfd808

Forum Replies Created

Viewing 5 reply threads
1 2
  • Replies
      • March 30, 2014 at 2:17 am
      Jwfd808
      Participant

      The main thing you have going for you is you so you have to be positive and stay positive, the studies are ok but those do not and can not take into account the will of the people this blog is the best place for support help and research. Trust me someone out there has been down the same path.  I have Stage V melanoma I have been threw IPI and a cliencal trial at UCLA for pd1 looked good at first but then started to fall off  looking into my next two option now. 

      But support from this site my wife my family and friend all plays a prat in the will to over come. 

      • March 30, 2014 at 2:17 am
      Jwfd808
      Participant

      The main thing you have going for you is you so you have to be positive and stay positive, the studies are ok but those do not and can not take into account the will of the people this blog is the best place for support help and research. Trust me someone out there has been down the same path.  I have Stage V melanoma I have been threw IPI and a cliencal trial at UCLA for pd1 looked good at first but then started to fall off  looking into my next two option now. 

      But support from this site my wife my family and friend all plays a prat in the will to over come. 

      • March 30, 2014 at 2:17 am
      Jwfd808
      Participant

      The main thing you have going for you is you so you have to be positive and stay positive, the studies are ok but those do not and can not take into account the will of the people this blog is the best place for support help and research. Trust me someone out there has been down the same path.  I have Stage V melanoma I have been threw IPI and a cliencal trial at UCLA for pd1 looked good at first but then started to fall off  looking into my next two option now. 

      But support from this site my wife my family and friend all plays a prat in the will to over come. 

      • March 30, 2014 at 2:00 am
      Jwfd808
      Participant

      I had pretty much the same thing months after my surgery it was Melanoma yours does not mean it is it could be scar tissue my prayer go out to you and your family

      • March 30, 2014 at 2:00 am
      Jwfd808
      Participant

      I had pretty much the same thing months after my surgery it was Melanoma yours does not mean it is it could be scar tissue my prayer go out to you and your family

      • March 30, 2014 at 2:00 am
      Jwfd808
      Participant

      I had pretty much the same thing months after my surgery it was Melanoma yours does not mean it is it could be scar tissue my prayer go out to you and your family

      • March 31, 2014 at 5:34 pm
      Jwfd808
      Participant

      Thanks Hazel I'll try it out

      • March 31, 2014 at 5:34 pm
      Jwfd808
      Participant

      Thanks Hazel I'll try it out

      • March 31, 2014 at 5:34 pm
      Jwfd808
      Participant

      Thanks Hazel I'll try it out

      • March 18, 2014 at 9:59 pm
      Jwfd808
      Participant

      It looks like I'm also going to be looking for a new trial. The great thing is there is one out there some place for each of us it just finding it and deal with all the side affects which I can not complain about mine have been few. Itching lots of drainage most of my is help to my skin all my internal organs look great. 

      • March 18, 2014 at 9:59 pm
      Jwfd808
      Participant

      It looks like I'm also going to be looking for a new trial. The great thing is there is one out there some place for each of us it just finding it and deal with all the side affects which I can not complain about mine have been few. Itching lots of drainage most of my is help to my skin all my internal organs look great. 

      • March 18, 2014 at 9:59 pm
      Jwfd808
      Participant

      It looks like I'm also going to be looking for a new trial. The great thing is there is one out there some place for each of us it just finding it and deal with all the side affects which I can not complain about mine have been few. Itching lots of drainage most of my is help to my skin all my internal organs look great. 

      • October 12, 2013 at 11:49 pm
      Jwfd808
      Participant
      Most of my problem seem to be in my skin my internal organs are all clean now. And yes I’m BRAF negative so kind of limits me.
      • October 12, 2013 at 11:49 pm
      Jwfd808
      Participant
      Most of my problem seem to be in my skin my internal organs are all clean now. And yes I’m BRAF negative so kind of limits me.
      • October 12, 2013 at 11:49 pm
      Jwfd808
      Participant
      Most of my problem seem to be in my skin my internal organs are all clean now. And yes I’m BRAF negative so kind of limits me.
Viewing 5 reply threads
1 2
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.