Jud Keith

Your reaction sounds similiar to mine but I have been fortunate in that my rash was only on my legs and did not itch and hasn’t interferred with my sleep. Just in the last few days my rash is clearing up fairly quickly. The swelling went down about 6 days ago and now each morning there is a noticeable improvement, (disappearance), in the rash. Maybe the prednosone is causing the clearing but there is definitely a daily improvement. Thank you for contacting me.

Thank you for the thought that my COVID 19 shots might be playing a part in my sudden rash and swelling after my treatments stopped seversl months earlier. I had not given any thought to that possibility since my first Pfizer shot was 1/15/21 and my second, and last, shot was 2/5/21. The bad rash and swelling started around June 14/15, approximately 4 months after my second shot. But now I think there maybe a definite connection even with the 4 months factored in. In the last couple of days the swelling has gone down considerably but the rash is still very severe and doesn’t seem to be lessening. At least it doesn’t itch and it isn’t painful- it just looks terrible. They did put me on 40mg of Prednosone a day and that may be why the swelling has gone down some. Thank you again for this idea. I think you may have hit on a very likely posibility which I had not considered.

Thank you for your responce. I am interested to know if your rash ever went away. My rash seems to be getting better and the leg/foot swelling has gone down so the prednosone must be helping. What has lead me to look for reasons other than the Opdivo for the answer to this sudden much- worse rash was my oncologist has been  fairly insistent that the rash was not the result of the treatments. He says in all the years he has been involved with immunotherapy he has not seen a rash reappear months later, especially one this severe. But like you said immunotherapy has a mind of its own. The dermatologist is testing me to see if the rash is Lichen Planus. I’m not sure what we do if it is since I know there isn’t any real cure for L/P. I’ve had a place in my mouth for years and nothing really helps it. It comes and goes at it’s own choosing. Let me know if your rash finally went away. Also did you treat it with any lotions, etc. that may have helped?   thanks, judd.