The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

jmaher

Forum Replies Created

Viewing 1 reply thread
  • Replies
      jmaher
      Participant

        I started on the Roche phase II study back in Feb of 2010 at 960mg twice a day.  The joint pain and swelling got really bad and I ended up hospitalized with pnenomia.  They restated me at 720 and while the side effects can be bad, for me they seem to be cyclic and tolerable.  I had the rash but it disappeared with the lower dose.  As far as fatigue, it happens and Red Bull is my friend.  I stay active and exercise which seems to help.  It is hard sometimes, but I make myself do something.  For the joint pain I have tried a number of things; lidocane patchs, MS cotin, tremadol, vicodin, motrin, etc.  All have had varying degrees of success but I have settled on vicodin and motrin.

        Joe

        jmaher
        Participant

          I started on the Roche phase II study back in Feb of 2010 at 960mg twice a day.  The joint pain and swelling got really bad and I ended up hospitalized with pnenomia.  They restated me at 720 and while the side effects can be bad, for me they seem to be cyclic and tolerable.  I had the rash but it disappeared with the lower dose.  As far as fatigue, it happens and Red Bull is my friend.  I stay active and exercise which seems to help.  It is hard sometimes, but I make myself do something.  For the joint pain I have tried a number of things; lidocane patchs, MS cotin, tremadol, vicodin, motrin, etc.  All have had varying degrees of success but I have settled on vicodin and motrin.

          Joe

      Viewing 1 reply thread