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      • May 27, 2017 at 2:55 am
      hopeFlorida
      Participant

      Hi Betsy! I finished a year of immunotherapy (Opdivo) and had the itchy skin for a year (was tourture), I tried the topical itch steroid cream from the dermotologist and found no releif. I tried to take Benadryl and it did help a tiny bit. Honestly I would have been happy in a nudist camp for the entire year, the itch was awful. Coconut oil helped, as did tepid oatmeal baths. 

      I am only now, after being off for 5 months, am feeling joint pain. I am trying to keep active by walking 3 miles a few times a week and will continue to do yoga twice a week. The pain is worse at night.

      Best of luck! The Opdivo worked great for me – totally stable 18 months after they found it in my liver. I completed a triathlon, half marathon and a couple 5k's since diagnosis. Keep him active!

      Also, I became vegetarian – really almost vegen as I do not eat dairy, gluten, sugar. Only home cooked healthy veggies, some gluten free pasta…just started drinking coffee again. 

      Good luck!

       

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