heidiboardman

Hi Denise

Sounds like I have similar to you.   I was initially diagnosed with malaigant melanoma on feb 2010, mole i had for forvever remover from stomach which turned out to be a melanoma  stage 3b.  It returned again at primary site in july 2011, and again removed.  i have beenn completely well and just had surgery for my treatment, nothing else.  Then at end of Novemver 2012 i started having headaches and felt a liitle under the weather, thought it was just the start of winter flu, but headaches got worse, ended up in hopsital where they scanned me and told me that my melanoma has spread to my brain and i have tumours there now.  I go for steriotactic radiothereapy on them on 9th jan 2013- not soon enough!!  its been a long wait. 

I too am on Dexamethasone (4  x 2mg a day)  which is something in itself to getting used to.  at least my headache has gone.   how are you managing with taking the steriods?  My face has swelled and it really dosesn't look like me. 

I hope everything is going well for you at moment

Heidi

Hi Denise

Sounds like I have similar to you.   I was initially diagnosed with malaigant melanoma on feb 2010, mole i had for forvever remover from stomach which turned out to be a melanoma  stage 3b.  It returned again at primary site in july 2011, and again removed.  i have beenn completely well and just had surgery for my treatment, nothing else.  Then at end of Novemver 2012 i started having headaches and felt a liitle under the weather, thought it was just the start of winter flu, but headaches got worse, ended up in hopsital where they scanned me and told me that my melanoma has spread to my brain and i have tumours there now.  I go for steriotactic radiothereapy on them on 9th jan 2013- not soon enough!!  its been a long wait. 

I too am on Dexamethasone (4  x 2mg a day)  which is something in itself to getting used to.  at least my headache has gone.   how are you managing with taking the steriods?  My face has swelled and it really dosesn't look like me. 

I hope everything is going well for you at moment

Heidi

Hi Denise

Sounds like I have similar to you.   I was initially diagnosed with malaigant melanoma on feb 2010, mole i had for forvever remover from stomach which turned out to be a melanoma  stage 3b.  It returned again at primary site in july 2011, and again removed.  i have beenn completely well and just had surgery for my treatment, nothing else.  Then at end of Novemver 2012 i started having headaches and felt a liitle under the weather, thought it was just the start of winter flu, but headaches got worse, ended up in hopsital where they scanned me and told me that my melanoma has spread to my brain and i have tumours there now.  I go for steriotactic radiothereapy on them on 9th jan 2013- not soon enough!!  its been a long wait. 

I too am on Dexamethasone (4  x 2mg a day)  which is something in itself to getting used to.  at least my headache has gone.   how are you managing with taking the steriods?  My face has swelled and it really dosesn't look like me. 

I hope everything is going well for you at moment

Heidi

Hi Denise

Sounds like I have similar to you.   I was initially diagnosed with malaigant melanoma on feb 2010, mole i had for forvever remover from stomach which turned out to be a melanoma  stage 3b.  It returned again at primary site in july 2011, and again removed.  i have beenn completely well and just had surgery for my treatment, nothing else.  Then at end of Novemver 2012 i started having headaches and felt a liitle under the weather, thought it was just the start of winter flu, but headaches got worse, ended up in hopsital where they scanned me and told me that my melanoma has spread to my brain and i have tumours there now.  I go for steriotactic radiothereapy on them on 9th jan 2013- not soon enough!!  its been a long wait. 

I too am on Dexamethasone (4  x 2mg a day)  which is something in itself to getting used to.  at least my headache has gone.   how are you managing with taking the steriods?  My face has swelled and it really dosesn't look like me. 

I hope everything is going well for you at moment

Heidi

Hi Denise

Sounds like I have similar to you.   I was initially diagnosed with malaigant melanoma on feb 2010, mole i had for forvever remover from stomach which turned out to be a melanoma  stage 3b.  It returned again at primary site in july 2011, and again removed.  i have beenn completely well and just had surgery for my treatment, nothing else.  Then at end of Novemver 2012 i started having headaches and felt a liitle under the weather, thought it was just the start of winter flu, but headaches got worse, ended up in hopsital where they scanned me and told me that my melanoma has spread to my brain and i have tumours there now.  I go for steriotactic radiothereapy on them on 9th jan 2013- not soon enough!!  its been a long wait. 

I too am on Dexamethasone (4  x 2mg a day)  which is something in itself to getting used to.  at least my headache has gone.   how are you managing with taking the steriods?  My face has swelled and it really dosesn't look like me. 

I hope everything is going well for you at moment

Heidi

Hi Denise

Sounds like I have similar to you.   I was initially diagnosed with malaigant melanoma on feb 2010, mole i had for forvever remover from stomach which turned out to be a melanoma  stage 3b.  It returned again at primary site in july 2011, and again removed.  i have beenn completely well and just had surgery for my treatment, nothing else.  Then at end of Novemver 2012 i started having headaches and felt a liitle under the weather, thought it was just the start of winter flu, but headaches got worse, ended up in hopsital where they scanned me and told me that my melanoma has spread to my brain and i have tumours there now.  I go for steriotactic radiothereapy on them on 9th jan 2013- not soon enough!!  its been a long wait. 

I too am on Dexamethasone (4  x 2mg a day)  which is something in itself to getting used to.  at least my headache has gone.   how are you managing with taking the steriods?  My face has swelled and it really dosesn't look like me. 

I hope everything is going well for you at moment

Heidi

I have 4.  The treatment wasn't  too bad.  Had 6 in total over 4 visits over one week.  Glad its done now and hope it all does what its supoosed too.  Just A long wait to find out.  They haven't found any other spread to anywhere else, just the tumors in my brain.  Been tired since.  The steriods are taking some getting used to, and I'm on the high dose at the mo because i just had the srt.  Hope everything else ok with you. I hope its all working for you too!!!   Take care.  Heidi  

I have 4.  The treatment wasn't  too bad.  Had 6 in total over 4 visits over one week.  Glad its done now and hope it all does what its supoosed too.  Just A long wait to find out.  They haven't found any other spread to anywhere else, just the tumors in my brain.  Been tired since.  The steriods are taking some getting used to, and I'm on the high dose at the mo because i just had the srt.  Hope everything else ok with you. I hope its all working for you too!!!   Take care.  Heidi  

I have 4.  The treatment wasn't  too bad.  Had 6 in total over 4 visits over one week.  Glad its done now and hope it all does what its supoosed too.  Just A long wait to find out.  They haven't found any other spread to anywhere else, just the tumors in my brain.  Been tired since.  The steriods are taking some getting used to, and I'm on the high dose at the mo because i just had the srt.  Hope everything else ok with you. I hope its all working for you too!!!   Take care.  Heidi