Harley Worthet

I'm sorry to hear you're going through this. Waiting for that Dr's Appt is the hardest part. FWIW I had a lymph node light up in my chest as well, early on, that turned out OK. Was just inflammation from respiratory illness.

Your Dr's will have tools, such as blood labs, needle biopsies & such get to the bottom of it. If the xray came from your family Dr. I would keep a melanoma specialist in the loop as well, just in case.

It's perfectly normal & OK to be afraid. The fear should settle down after a while. In the meantime we will hope & pray that they have good news for you.

HI Mike. 

I hit the same wall, seemingly incurable, chronic, ulcerative colitis broight on by 2 Ipi sessions. Knocked me so low I spent 3 months out of work, & nothing they tried seemed to work.

What DID finally work was a double dose of Remicade. (280 mg) Not the 120 mg/day of Prednisone, not even several standard doses of Remicade over several hospital visits.  So in my world Remecade & its generic (Infliximab) is a Godsend. I still need to add it to my immunotherapy regimen every 2 months or so to keep the diarhea at bay. 

Of course everybody's metabolism reacts differently, so pls talk to an upper GI Specialist about your situation first. But every Dr I've spoken with here had nothing but praise for Remicade. And come on back to let us know how you're doing. 

Best wishes, 

Mike B

Hi Obtu.

My apologies, I've been trying to answer your question for several days but the 'reply' page just wouldn't load. I've only made a few posts so might be missing something.  But yeah, they've got me on Opdivo, standard dose every 2 weeks. It's not working for me, I've progressed to stage 4. (Mets to neck, lungs & extremeties) So they're going to test genetic markers & look for plan B. For me, Nivo is a sweetheart compared to Ipi; I can go to work every day & the only side effect is a little fatigue after each infusion. Hopefully it will work better for you if you go that route.

Best wishes,

Mike B.