MRF-Logo2019-Horizontal-RGB
GreenGal1967
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

GreenGal1967

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • December 19, 2010 at 5:00 am
      GreenGal1967
      Participant

        Best wishes to you, Janice.  My 18 year old stepdaugher (stage 4) started PLX4032 about 3 months ago.  She's just this week getting her first scans so we don't know what they'll show but she also had a palable tumor under the surface of her skin at the back of her neck.  When she started the therapy, it was the quite large and noticable but it has shruken considerably and you can barely feel it now.

        In terms of side effects, she feels pretty well if a little tired but since she's young she still has that youthful energy.  She became very, very photosensitive and had the worst dry flaking I've ever seen. along with extremely rough, bumpy skin.  Her skin looked truly dreadful.  Today we did an almond oil facial & managed to get most of the flakes off with a steaming wash cloth & her skin looks 1000% better.  Heavy duty sun protection is crucial when taking this medication.  Her hair has also started to thin a bit and she's lost her eyebrows and I think she's losing eye lashes, too. 

        Sending good thoughts to you and everyone battling this terrible disease.  Fight on!!

        • December 19, 2010 at 5:00 am
        GreenGal1967
        Participant

          Best wishes to you, Janice.  My 18 year old stepdaugher (stage 4) started PLX4032 about 3 months ago.  She's just this week getting her first scans so we don't know what they'll show but she also had a palable tumor under the surface of her skin at the back of her neck.  When she started the therapy, it was the quite large and noticable but it has shruken considerably and you can barely feel it now.

          In terms of side effects, she feels pretty well if a little tired but since she's young she still has that youthful energy.  She became very, very photosensitive and had the worst dry flaking I've ever seen. along with extremely rough, bumpy skin.  Her skin looked truly dreadful.  Today we did an almond oil facial & managed to get most of the flakes off with a steaming wash cloth & her skin looks 1000% better.  Heavy duty sun protection is crucial when taking this medication.  Her hair has also started to thin a bit and she's lost her eyebrows and I think she's losing eye lashes, too. 

          Sending good thoughts to you and everyone battling this terrible disease.  Fight on!!

      Viewing 1 reply thread